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Research Institutes and/or Public Policy Analysis
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55.
Consilium Scientific Us Inc
Patients deserve better clinical research Consilium Scientific is an independent nonprofit organisation aiming to improve clinical research through scientific rigour and transparency UPCOMING EVENTS and NEWS Sign up Sign up Learn More Learn More Visit Read OUR PURPOSE Create a platform for initiatives and individuals to collaborate in improving the quality of clinical research Drive change in attitudes and practice in clinical research through education and advocacy Campaign for policy changes that will increase the value of clinical research for patients and society Consilium wins NIHR grant to lead the RareCare project BOARD OF TRUSTEES Eric Low OBE John HickmanDSc Sir Andrew Dillon Dr.
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Research Institutes and/or Public Policy Analysis
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56.
CENTER FOR COMPUTATIONAL SCIENCE RESEARCH INC
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Parkland Center for Clinical Innovation
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Fund Raising and/or Fund Distribution
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Sdhb Coalition Inc
Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease SEE SCHEDULE O ABOVE Vision Mission Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease namely Pheochromocytoma and Paraganglioma.
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Fam177a1 Research Fund
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Private Grantmaking Foundations
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Wallace Beeson Foundation Inc
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Specifically Named Diseases
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SETBP1 Society
President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.
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The Children's Rare Disorders Fund
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Patient Services�Entertainment, Recreation
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HLH Heroes Foundation Not for Profit
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