Kamie K Preston Hereditary Cancer Foundation

Provides Education, Support, Awareness for Hereditary Cancer Genetic Testing.

Coming Together For A Cure, Inc

A 501c3 nonprofit dedicated to advancing stem cell therapy for Duchenne MD and other rare diseases.

• Alliance/Advocacy Organizations

• 93.

Young Genetic Stroke Alliance

Raising awareness and educating the community on all things related to this rare disease.

• Fund Raising and/or Fund Distribution

• 94.

Tbc1D24 Foundation

Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.

CANAVAN RESEARCH ILLINOIS

Join the worldwide mission to cure Canavan disease.

• Fund Raising and/or Fund Distribution

• 96.

HOPE FOR HARVEY FOUNDATION INC

Register for the 4th Annual Hope for Harvey Golf Tournament on 882025.

• Specifically Named Diseases

• 97.

MACKENZIES MISSION

Closing the healthcare educational gap about #amyloidosis through patient educators; focused on future and current medical providers.

• Fund Raising and/or Fund Distribution

• 98.

WARDS FOUNDATION

Save the Date for A Rare Affair Saturday February 10 2024 at Charlotte Country Club A unique wine experience with access to rare varietals vineyards and vintages benefiting families facing rare diseases.

• Fund Raising and/or Fund Distribution

• 99.

BFLS Incorporated

Mom on a mission to raise awareness and funds for research for the rare genetic disorder Börjeson-Forssman-Lehman Syndrome or BFLS� Born Fierce.