• Single Organization Support

• 136.

INTERNATIONAL WAGR SYNDROME ASSOCIATION

The IWSA represents more than 350 members in 45 countries around the world The mission of the International WAGR Syndrome Association is to promote awareness, stimulate research, and support families affected by WAGR syndrome.

HSAN1E Society

Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

Prader-Willi Syndrome Association | USA

What’s YOUR story. Tweet us and tell us what it’s like #GrowingUpRare We hope you will suggest the PWSA | USA facebook page to your friends.

• Research Institutes and/or Public Policy Analysis

• 139.

Riaan Research Initiative Inc

501(c)(3) non-profit organization hunting for a cure for rare and life-limiting genetic diseases that hurt children, starting with Cockayne syndrome.

• Cancer

• 140.

KrabbeConnect

KrabbeConnect's mission is to be the source of comprehensive information and access to resources for patients with Krabbe disease.

• Birth Defects, Genetic Diseases Research

• 141.

Alstrom Angels Corp

www. alstromangels. org Dedicated to raising funds for Alstrom Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and improving family support for those affected by the Syndrome.

• Birth Defects, Genetic Diseases

• 142.

The PolG Foundation

The mission of The POLG Foundation is to support and accelerate research to find effective treatments and a cure for PolG mitochondrial disorders.

• Alliance/Advocacy Organizations

• 143.

Baker-Gordon Syndrome Foundation

The BakerGordon Syndrome Foundation was founded to help families affected by this syndrome make connections with one another.

• Human Service Organizations

• 144.

AMERICAS COMMITTEE FOR TREATMENT AND

ACTRIMS provides leadership in the field of multiple sclerosis and other demyelinating diseases.