Disease Management Network Inc

We Are Disease Management Network Building Partnerships for Patients With Rare or Chronic Conditions We are a notforprofit organization that builds partnerships with patient communities and healthcare entities to provide peercoordinated datadriven disease management services for patients with rare or chronic conditions.

• Birth Defects, Genetic Diseases Research

• 74.

Charleys Fund Inc

Our goal is to cure Duchenne Muscular Dystrophy in time to save Charley's life and the lives of thousands of boys like him.

• Pediatrics Research

• 75.

National Pediatric Blood Pressure Awareness Foundation

National Pediatric Blood Pressure Awareness Foundation KYKN KNOW YOUR KID'S NUMBERS.

• Fund Raising and/or Fund Distribution

• 76.

Harmony 4 Hope

Leading Nonprofit Mobilizing Community & Raising Funds 4 Rare Disease through the Universal Power of Music & Storytelling.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 77.

National Niemann-Pick Disease Foundation

National Niemann-Pick Disease Foundation The NNPDF offers support and guidance to families and patients of those affected by Niemann-Pick Dise Mission: We are a non-profit group dedicated to supporting and empowering patients and families affected by Niemann-Pick disease through education, collaboration and research.

• Specifically Named Diseases

• 78.

Xla Life Corp

Home About Us What is XLA News Contact Us More Advocacy.

Dlg4 Research Fund

DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Mission To find specific treatment options and a cure for DLG4 patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of DLG4 related synaptopathy.

• Alliance/Advocacy Organizations

• 80.

SPECIAL BOOKS BY SPECIAL KIDS INC

Special Books by Special Kids is a multi-media movement that spreads empathy, understanding and acceptance for neurodiverse individuals.

• Birth Defects, Genetic Diseases

• 81.

HNRNP FAMILY FOUNDATION

Nonprofit dedicated to serving those impacted by HNRNP-Related Rare Neurodevelopmental Disorders through supporting community and research Home Donate Events Learn Projects Join our Registry Join our Researcher Registry Shop Contact and Connect Submit your story HNRNPC Item HNRNPH1RNDD HNRNPH2RNDD More Our Mission The HNRNP Family Foundation is dedicated to improving the lives of patients and families around the world that live with rare HNRNPRelated Neurodevelopmental Disorders HNRNPRNDDs.