Phelan McDermid Syndrome Foundation

Official site of the Phelan-McDermid Syndrome Foundation.

• Single Organization Support

• 101.

RI Foundation

Rehabilitation International is a global network working to empower persons with disabilities and provide sustainable solutions for a more inclusive society.

PHEO ALLIANCE

Advocacy, awareness and support for those affected by #pheochromocytoma/ #paraganglioma The mission of the Pheo Para Alliance is to invest in research to accelerate treatments and cures while empowering patients, their families, and medical professionals through advocacy, education and a global community of support.

• Research Institutes and/or Public Policy Analysis

• 103.

Forgotten Diseases Research Foundation

THE FORGOTTEN DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS.

PRADER-WILLI CALIFORNIA FOUNDATION

Our vision is a A Full Life Without Limits for everyone with Prader-Willi syndrome.

• Fund Raising and/or Fund Distribution

• 105.

Better Future 4 U

501(c)(3) nonprofit who’s mission is to fund research that leads to a treatment for individuals with HNRNPU A nonprofit organization looking to create a better future for those affected by HNRNPU and where a treatment for this rare genetic disorder is found.

• Nerve, Muscle, and Bone Diseases

• 106.

Lynk Up World (LUW)

Lynk Up • World (LUW) is on a mission to bring meaningful connection to children & families impacted by rare diseases through art, support and innovation.

• Mental Health Associations - Multipurpose

• 107.

Emotions Matter Inc

Join Emotions Matter, Inc, in connecting and empowering those impacted by Borderline Personality Disorder to raise awareness and advocate for better health care To support, educate and advocate for borderline personality disorder to promote recovery.

• Science, General (includes Interdisciplinary Scientific Activities)

• 108.

ASH REGISTRY INC

The ASH Research Collaborative (ASH RC) is a non-profit organization that was established by ASH in 2 Request for Applications RFA Open The ASH Research Collaborative ASH RC invites prospective research sites to submit applications to join the ASH RC Sickle Cell Disease SCD Research Network Council now through April 14 2025.