• Diseases, Disorders, Medical Disciplines N.E.C.

• 82.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

• Private Operating Foundations

• 83.

DEATER FOUNDATION INC

Deater Foundation Inc. works to provide funding and support for medical research on HSAN1, a hereditary sensory neuropathy, with the goal of advancing understanding, awareness and helping to bring about a potential treatment/cure for this disease.

• Professional Societies & Associations

• 84.

Sturge-Weber Foundation

Embracing our uniqueness. We may be rare, but we're also one in a million.

• Alliance/Advocacy Organizations

• 85.

Stargardtians Inc

Our mission is to raise awareness of Stargardt’s Disease and to create opportunities for people living with Stargardt’s to further their education and develop their own business.

Dlg4 Research Fund

DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Mission To find specific treatment options and a cure for DLG4 patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of DLG4 related synaptopathy.

• Birth Defects, Genetic Diseases

• 87.

EBF3 HADDS Foundation

EBF3 HADDS FOUNDATION Home SupportDonate About Events Blog Shop More ARTICLES EVENTS BLOG CONNECT Learn more about what is happening globally with our community.

• Specifically Named Diseases

• 88.

MLD FOUNDATION

SUPPORTING FAMILIES and INFLUENCING RESEARCH AROUND THE WORLD for METACHROMATIC LEUKODYSTOPHY .

• Birth Defects, Genetic Diseases

• 89.

CACNA1A Foundation

Nonprofit dedicated to a brighter future for those with CACNA1A variants.

• International Relief

• 90.

CURE GLAUCOMA FOUNDATION

The mission of Cure Glaucoma is to provide access to quality care, fund transformational research, and train doctors in underserved parts of the world.