Cloves Syndrome Community

Support, Research & Education to improve the quality of life for ppl with CLOVES.

• Private Grantmaking Foundations

• 92.

Brian J Kelley Foundation for Hope Inc

Through Brian’s Hope, a 501(c)(3) charitable foundation, we look forward to when no child experiences the devastation of adrenoleukodystrophy (ALD) Through Brian’s Hope, a 501(c)(3) charitable foundation, we look forward to a day when no child will experience the devastation of adrenoleukodystrophy (ALD).

• Diseases, Disorders, Medical Disciplines N.E.C.

• 93.

Lydian Accelerator

Our mission is to accelerate genetic treatments for children suffering from genetic diseases.

Foxg1 Research Foundation

FOXG1 syndrome is a childhood neurological genetic disorder and is a key to understanding many brain disorders.

• Epilepsy Research

• 95.

Love for Liam Foundation

Love For Liam Foundation Love For Liam Foundation Hope.

• Specifically Named Diseases

• 96.

The Kennedy Ladd Foundation, Inc.

The Kennedy Ladd Foundation is committed to ending the suffering caused by MPS1, a progressive and life-threatening disease.

• Fund Raising and/or Fund Distribution

• 97.

THE CHAMP FOUNDATION

Mission The Champ Foundation supports research toward better treatment and a cure for single largescale mitochondrial deletion syndromes SLSMDS like Pearson syndrome.

• International Relief

• 98.

CURE GLAUCOMA FOUNDATION

The mission of Cure Glaucoma is to provide access to quality care, fund transformational research, and train doctors in underserved parts of the world.

• Patient Services�Entertainment, Recreation

• 99.

Coalition For Usher Syndrome Research

Usher Syndrome Coalition: Connecting the global Usher community.