• Fund Raising and/or Fund Distribution

• 109.

EBSTEINS ANOMALY FOUNDATION INC

The goal of the Ebstein's Anomaly Foundation is to fund research in order to advance the diagnosis, treatment and prevention of this rare congenital heart defect.

• Specifically Named Diseases

• 110.

Prion Alliance Inc

Non-profit organization devoted to funding scientific research towards a treatment or cure for human prion diseases.

• Epilepsy

• 111.

Cure Ahc Foundation

Alternating Hemiplegia of Childhood (AHC) is a complex, ultra-rare neurological disease.

• Fund Raising and/or Fund Distribution

• 112.

All in for Ethan

All In For Ethan - is a 501c3 charity that was created to enhance the quality of life for children a THE PURPOSE OF THIS ORGANIZATION IS TO PROVIDE SUPPORT FOR AND ENHANCE THE QUALITY OF LIFE OF CHILDREN AND FAMILIES AFFECTED BY GIANT AXON Ethan Inspired The Start Find Out Why.

• Specifically Named Diseases

• 113.

Pmd Foundation A New Jersey Non Profit Corporation

#Research #Awareness #Advocacy & #FamilySupport for those with #PelizaeusMerzbacherDisease #PMD #newbornscreening #raredisease #leukodystrophy #myelin The PMD Foundation is a 501(c)3 non-profit organization formed to serve three distinct interest groups as they relate to Pelizaeus-Merzbacher Disease: The Children and Families, the General Public, the Researchers and Clinicians.

• Specifically Named Diseases

• 114.

3Q29 Foundation

3q29 Foundation Creating a path to treatment for chromosome 3q29 syndromes through funding research communitybuilding and increasing access to information and resources.

Lcc Foundation Inc

The LCC Foundation’s MISSION is to help families across the United States and beyond diagnosed with Leukoencephalopathy with Brain Calcifications and Cysts (LCC) by giving them the resources they need to fight this rare and devastating disease.

• Specifically Named Diseases Research

• 116.

SLC6A1 CONNECT

People Magazine Exclusive Milestones for Maxwell What if your child was diagnosed with a disease so rare it didnt have a name.

• Single Organization Support

• 117.

THE MED13L FOUNDATION INC

Supporting MED13L families through awareness, research, and community.