The Paisley Foundation Inc

Raise awareness of Thanatophoric Dysplasia, financially support clinical research, and provide financial assistance and community resources to affected families Raise Awareness of Thanatophoric Dysplasia Financially Support Clinical Research and Provide Financial Assistance and Community Resources to Affected Families Building a Community to Support TD Families The foundations purpose is to raise awareness of Thanatophoric Dysplasia TD financially assist families both in their everyday lives and where insurancesocial programs fall short and to be a community resource for families present and future whose children have TD.

Rare Trait Hope Fund

Rare trait Hope Fund facilitates research and provides funding for the development of treatments for a rare disease called Aspartylglucosaminuria (AGU) in hopes to save lives of AGU kids and adults.

Kcnq2 Cure Alliance Inc

Our promise is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 Raising awareness, educating, and advancing research for KCNQ2 Developmental and Epileptic Encephalopathy.

• Specifically Named Diseases

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Pmd Foundation A New Jersey Non Profit Corporation

#Research #Awareness #Advocacy & #FamilySupport for those with #PelizaeusMerzbacherDisease #PMD #newbornscreening #raredisease #leukodystrophy #myelin The PMD Foundation is a 501(c)3 non-profit organization formed to serve three distinct interest groups as they relate to Pelizaeus-Merzbacher Disease: The Children and Families, the General Public, the Researchers and Clinicians.

Malan Syndrome Foundation Inc

Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene.

Alagille Syndrome Alliance

The Alagille Syndrome Alliance is an international support and advocacy network for people with ALGS and their families.

Action for Aidan

Please Help Us to Raise Money for Hunter Syndrome research.

• Fund Raising and/or Fund Distribution

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JOHN MICHAEL PIERCE FOUNDATION

Let's make a memory. Countryregion Countryregion Item added to your cart Our Simple Mission The mission of the John Michael Pierce Foundation is to build awareness in young adults about the early signs and symptoms of esophageal cancer.

• Fund Raising and/or Fund Distribution

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THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY

Fighting for children and families affected by 4H Leukodystrophy.