Decoding Developmental Epilepsies

We serve two distinct communities. First, we serve those living with SCN8A and their families.

• Fund Raising and/or Fund Distribution

• 74.

Arid1B Research Foundation

Accelerating the development of disease-modifying treatments for #ARID1B-RD (haploinsufficiency) - the most frequently mutated gene in de novo NDDs (ASD, ID).

• Human Service Organizations

• 75.

Daniels Fight Inc

Mission Daniels Fight is driven to raise awareness and educate the public about Alexander Disease all while raising funds for research to one day end this nasty disease.

• Cancer

• 76.

Fbxo31 Foundation

The FBXO31 Foundation was formed to eradicate FBXO31-related cerebral palsy by raising awareness and funds to accelerate research for a cure.

• Fund Raising and/or Fund Distribution

• 77.

Tough Genes Inc

Currently, there is no treatment for IRF2BPL-Related Disorder.

• Birth Defects, Genetic Diseases

• 78.

DESSH

Join the DeSantoShinawi SyndromePATIENT REGISTRYpowered by About Us DESSH Syndrome News Events Get Involved Legal and Privacy More DESSH is short forDeSantoShinawi Syndrome.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 79.

SIEGEL RARE NEUROIMMUNE ASSOCIATION

SRNA The nonprofit advocating for individuals with rare neuroimmune disorders ADEM AFM MOGAD NMOSD ON TM Help us provide hope and help to those living with ADEM AFM MOGAD NMOSD ON and TM.

• Specific Organ Research

• 80.

L-CMD RESEARCH FOUNDATION

L-CMD Research Foundation's purpose is to translate available scientific technologies into treatment Today we are one step closer to a tomorrow without LMNArelated congenital muscular dystrophy.

• Scholarships, Student Financial Aid, Awards

• 81.

MATTHEW RENK FOUNDATION

jrenkmatthewrenkfoundation. org The Matthew Renk Foundation is an approved IRS Code section 501c3 tax entity.