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Similar organisations to NOONAN SYNDROME FOUNDATION

Community Rebuilding
  • Cancer

  • 154.

MYELODYSPLASTIC SYNDROMES FOUNDATION

The MDS Foundation is building critical awareness of Myelodysplastic Syndromes (MDS), a rare, often undetected blood cancer.

Social Rank

3269

Location

Yardville

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Community Rebuilding
  • Services to Promote the Independence of Specific Populations

  • 155.

Bleeding Disorders Advocacy Network

Bleeding Disorders Advocacy Network Fall Family Retreat Learn more Since 2005 the BDAN Fall Family Retreat has provided families and individuals with bleeding disorders from across New York State an opportunity to learn connect and play in the splendor that is fall in the Adirondacks.

Location

Varysburg

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Community Rebuilding

DUPUYTREN RESEARCH GROUP

Dupuytren Research Group: A Future Without Dupuytren Disease Mission Statement: A future without Dupuytren disease.

Social Rank

5639

Location

West Palm Beach

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Community Rebuilding
  • Human Service Organizations

  • 157.

Stickler Involved People Inc

Thank you Pat and Bill Houchin for all you have done for the Stickler Community over the years.

Location

Augusta

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Community Rebuilding

Cri Du Chat Research Foundation Inc

CDCRF is a 501c3 Non-Profit supporting the development of a treatment for Cri du Chat / 5p- Syndrome.

Social Rank

1400

Location

Brooklyn

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 159.

Chloe Strong Foundation

The Chloe Strong Foundation The Chloe Strong Foundation is a 501c3 nonprofit organization that exists to improve the quality of life for those that struggle with the rare neurological disorder Rett Syndrome by providing financial assistance support and prayers.

Location

Nolensville

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Community Rebuilding

CureSHANK

CureSHANK's mission is to accelerate the development of treatments and cures for Phelan-McDermid Syndrome and other SHANK-related disorders.

Social Rank

308

Location

Beverly Hills

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 161.

Loeys-Dietz Syndrome Foundation

The LDSF is a 501(c)3 non-profit organization organization dedicated to:--encouraging education about Loeys-Dietz syndrome and related connective tissue disorders to medical professionals and lay communities in order to aid in identification, diagnosis and treatment of Loeys-Dietz syndrome--fostering research about Loeys-Dietz syndrome--providing a support network, for individuals, parents and families affected by Loeys-Dietz syndrome This March were celebrating 20 years since LoeysDietz Syndrome was first identified.

Location

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Community Rebuilding
  • Specifically Named Diseases

  • 162.

ALL THINGS KABUKI INC

All Things Kabuki is a registered 501(c)3 non-profit dedicated to supporting families affected by Kabuki syndrome.

Social Rank

5248

Location

WASILLA

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