Similar organisations to NOONAN SYNDROME FOUNDATION
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Cancer
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154.
MYELODYSPLASTIC SYNDROMES FOUNDATION
The MDS Foundation is building critical awareness of Myelodysplastic Syndromes (MDS), a rare, often undetected blood cancer.
3269
Yardville
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Services to Promote the Independence of Specific Populations
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155.
Bleeding Disorders Advocacy Network
Bleeding Disorders Advocacy Network Fall Family Retreat Learn more Since 2005 the BDAN Fall Family Retreat has provided families and individuals with bleeding disorders from across New York State an opportunity to learn connect and play in the splendor that is fall in the Adirondacks.
Varysburg
DUPUYTREN RESEARCH GROUP
Dupuytren Research Group: A Future Without Dupuytren Disease Mission Statement: A future without Dupuytren disease.
5639
West Palm Beach
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Human Service Organizations
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157.
Stickler Involved People Inc
Thank you Pat and Bill Houchin for all you have done for the Stickler Community over the years.
Augusta
Cri Du Chat Research Foundation Inc
CDCRF is a 501c3 Non-Profit supporting the development of a treatment for Cri du Chat / 5p- Syndrome.
1400
Brooklyn
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Fund Raising and/or Fund Distribution
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159.
Chloe Strong Foundation
The Chloe Strong Foundation The Chloe Strong Foundation is a 501c3 nonprofit organization that exists to improve the quality of life for those that struggle with the rare neurological disorder Rett Syndrome by providing financial assistance support and prayers.
Nolensville
CureSHANK
CureSHANK's mission is to accelerate the development of treatments and cures for Phelan-McDermid Syndrome and other SHANK-related disorders.
308
Beverly Hills
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Alliance/Advocacy Organizations
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161.
Loeys-Dietz Syndrome Foundation
The LDSF is a 501(c)3 non-profit organization organization dedicated to:--encouraging education about Loeys-Dietz syndrome and related connective tissue disorders to medical professionals and lay communities in order to aid in identification, diagnosis and treatment of Loeys-Dietz syndrome--fostering research about Loeys-Dietz syndrome--providing a support network, for individuals, parents and families affected by Loeys-Dietz syndrome This March were celebrating 20 years since LoeysDietz Syndrome was first identified.
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Specifically Named Diseases
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162.
ALL THINGS KABUKI INC
All Things Kabuki is a registered 501(c)3 non-profit dedicated to supporting families affected by Kabuki syndrome.
5248
WASILLA





