Sjögren’s Foundation

Creating a community where patients, healthcare professionals & researchers come together to conquer the complexities of Sjögren's.

Cystic Fibrosis Foundation

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

Dysautonomia Youth Network of America, Inc.

Thank you for visiting the official facebook page of the DYNA, Inc.

Platelet Disorder Support Association, Inc.

Platelet Disorder Support Association ~ the premier source for information, treatments, and support for people with ITP (immune thrombocytopenia).

The Global Foundation for Peroxisomal Disorders

The GFPD's mission is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

Kcnq2 Cure Alliance Inc

Our promise is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 Raising awareness, educating, and advancing research for KCNQ2 Developmental and Epileptic Encephalopathy.

• Alliance/Advocacy Organizations

• 151.

Charlotte and Gwenyth Gray Foundation

Sisters, Charlotte & Gwenyth, were diagnosed w/ Batten Disease, a rare & fatal brain disease.

• Fund Raising and/or Fund Distribution

• 152.

Beta-Spectrin 1 Sptbn1 Foundation Inc

Providing support to those effected by SPTBN1 For questions or to further connect, please reach us at SPTBN1foracure@gmail.

CureSHANK

CureSHANK's mission is to accelerate the development of treatments and cures for Phelan-McDermid Syndrome and other SHANK-related disorders.