National Down Syndrome Society

NDSS empowers individuals with Down syndrome and their families.

• Specifically Named Diseases

• 191.

Inspire Hope Foundation for Urea Cycle Disorders Inc

We are excited to introduce the Inspire Hope Foundation for Urea Cycle Disorders, Inc.

• Fund Raising and/or Fund Distribution

• 192.

Kellen Cares Foundation

Dedicated to supporting boys and young men survive mental health issues through community outreach and resources.

• Specifically Named Diseases Research

• 193.

Cure Szt2

Cure SZT2 is a non-profit organization dedicated to families affected by the genetic mutation SZT2.

• Birth Defects, Genetic Diseases Research

• 194.

PURA SYNDROME FOUNDATION

The PURA Syndrome Foundation is a global non-profit organisation.

• Services to Promote the Independence of Specific Populations

• 195.

Look. Foundation

Dedicated to changing the course of mental health by ensuring that no child or young adult with PANS/PANDAS is missed.

• Specifically Named Diseases Research

• 196.

SLC6A1 CONNECT

People Magazine Exclusive Milestones for Maxwell What if your child was diagnosed with a disease so rare it didnt have a name.

• Fund Raising and/or Fund Distribution

• 197.

OPEN MEDICINE FOUNDATION

OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.

ASSOCIATION OF UNIVERSITY CENTERS ON

AUCD advances policies and practices for all people with disabilities, their families, and their communities.