GALACTOSEMIA FOUNDATION

A national, nonprofit, volunteer organization providing information, support and networking opportunities to those impacted by galactosemia since 1985 Galactosemia Foundation is a national, non-profit, volunteer organization whose mission is to provide information, support, and networking opportunities to families affected by galactosemia.

• Eye

• 200.

HEAR SEE HOPE

We are a not for profit in search of funds to sustain the fight against Usher syndrome.

• Specifically Named Diseases Research

• 201.

A Foundation Building Strength Inc

Our mission is to find treatments for Nemaline Myopathy.

• Private Operating Foundations

• 202.

DEATER FOUNDATION INC

Deater Foundation Inc. works to provide funding and support for medical research on HSAN1, a hereditary sensory neuropathy, with the goal of advancing understanding, awareness and helping to bring about a potential treatment/cure for this disease.

• Alliance/Advocacy Organizations

• 203.

Coffin-Siris Syndrome Foundation

Coffin-Siris Syndrome Foundation is a 501c3 that exists to connect, support, and inform those affected by Coffin-Siris Syndrome and related disorders and promote related research.

• Birth Defects, Genetic Diseases Research

• 204.

Spata Foundation Inc

Our mission is to advocate, educate, and raise funds for research towards SPATA5 & SPATA5L1 Disorders The SPATA Foundation's Mission is to advocate, educate, and drive research towards SPATA5 and SPATA5L1 Related Disorders.

• Alliance/Advocacy Organizations

• 205.

Trpm3 Foundation

Patient advocacy and support for those affected by #TRPM3 #ionchannel related disorders.

• Philanthropy/Charity/ Voluntarism Promotion (General)

• 206.

HOPEFUL HALOS FOUNDATION

About Share Event Info Register Contact More.

• Birth Defects, Genetic Diseases

• 207.

LEO'S LIGHTHOUSE FOUNDATION INC

Leo’s Lighthouse is a non-profit making a difference in the lives of children affected by Bainbridge-Ropers Syndrome.