National MPS Society, Inc.

The National MPS Society exists to find cures for MPS and ML.

• Specifically Named Diseases

• 173.

Foundation for Women and Girls With Blood Disorders

We work to achieve education and awareness with key healthcare providers, by translating and disseminating blood disorder provider information and research.

• Birth Defects, Genetic Diseases

• 174.

Cystic Fibrosis Foundation

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

Rare and Undiagnosed Network Inc

RUN for those affected with rare/undiagnosed conditions: Raise awareness.

National Scleroderma Foundation

A relentless force in finding a cure and improving the lives of people affected by #scleroderma.

• Birth Defects, Genetic Diseases Research

• 177.

Alstrom Angels Corp

www. alstromangels. org Dedicated to raising funds for Alstrom Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and improving family support for those affected by the Syndrome.

• Specifically Named Diseases

• 178.

Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop

We are dedicated to amplifying patient voices, and one day meeting the first survivor of ALSP.

Children's Cardiomyopathy Foundation

The Children's Cardiomyopathy Foundation (CCF) is a non-profit organization focused on pediatric cardiomyopathy, a chronic disease of the heart muscle.

• Birth Defects, Genetic Diseases

• 180.

THINKGENETIC FOUNDATION INC

Helping those living with a genetic disease by shortening the time to diagnose a genetic condition and providing actionable, patient-focused guidance.