DDC CLINIC FOR SPECIAL NEEDS CHILDREN

DDC Clinic is a non-profit primary care, education, and research facility.

• Fund Raising and/or Fund Distribution

• 2.

Curears A NJ Nonprofit Corporation

Our mission is to spread awareness, connect and provide support to affected families and fund research for the ultra-rare mtARS genes.

• Management & Technical Assistance

• 3.

Pathways Corp

To elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together Home Our Team Events Initiatives Partners Media Kit Contact More Its Time to Listen to the Rare Disease Community.

Malan Syndrome Foundation Inc

Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene.

• Alliance/Advocacy Organizations

• 5.

Rare-X

PATIENTS' DATA POWERING PROGRESS - RARE-X is expected to become the largest data-sharing initiative focused on rare diseases.

• Birth Defects, Genetic Diseases Research

• 6.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

• Alliance/Advocacy Organizations

• 7.

Rare Disease Company Coalition Inc

We are a coalition of life science companies committed to discovering, developing & delivering rare disease treatments for the patients we serve.

• Birth Defects, Genetic Diseases Research

• 8.

Valerias Foundation for Kcnt1 Research Inc

#rettevaleria #savevaleria #helpvaleria #supportvaleria #valeriasKCNT1 #raredisease #epilepsy #geneticdisorder #meinestimmefuereinleben #teamvaleria The Valeria Foundation is committed to achieving that: [+] to promote knowledge about the existence and cure of orphan diseases.

• Specifically Named Diseases

• 9.

DON'T FORGET ME

•Dedicated to Finding a Cure or Medical Treatment for the rare disease BPAN.