• Fund Raising and/or Fund Distribution

• 73.

Ellie White Foundation for Rare Genetic Disorders Inc

We will not give up until a cure for Wolfram syndrome is found for Ellie and the children suffering from this disorder.

Coming Together For A Cure, Inc

A 501c3 nonprofit dedicated to advancing stem cell therapy for Duchenne MD and other rare diseases.

• Birth Defects, Genetic Diseases

• 75.

Uba5 Foundation

This page is to help raise awareness and connect with others that have been diagnosed UBA5 gene mutation.

• Birth Defects, Genetic Diseases Research

• 76.

Spata Foundation Inc

Our mission is to advocate, educate, and raise funds for research towards SPATA5 & SPATA5L1 Disorders The SPATA Foundation's Mission is to advocate, educate, and drive research towards SPATA5 and SPATA5L1 Related Disorders.

• Professional Societies & Associations

• 77.

Healthspan Action Coalition Inc

The mission is to advance biomedical research related to aging, longevity and healthspan.

• Alliance/Advocacy Organizations

• 78.

Finding Nori Foundation

The Finding Nori Foundation Home About Meet the Team Finding Joy Blog Resources Publications DONATE Contact Upcoming Events More Raising research funding for PAX5 and ALG13 related neurological disordersEmpowering families with ultra rare undiagnosed diseases to find answers Our Mission Our mission is to advance scientific research through fundraising and advocacy for ultra rare undiagnosed genetic disorders.

Dlg4 Research Fund

DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Mission To find specific treatment options and a cure for DLG4 patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of DLG4 related synaptopathy.

• Specifically Named Diseases

• 80.

APS TYPE 1 FOUNDATION

The APS Type 1 Foundation supports education, awareness, and fundraising for critical research.

• Social Science Research Institutes, Services N.E.C.

• 81.

National Center for Health Research Inc

The National Center for Health Research Health Research 4 U Safe To Play National Center for Health Research The Voice for Prevention Treatment and Policy The National Center for Health Research conducts analyzes and explains the latest research and works with patients consumers and opinion leaders to use that information to improve their own health and to develop better programs policies and services.