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Similar organisations to EHLERS-DANLOS SOCIETY

Community Rebuilding
  • Private Grantmaking Foundations

  • 91.

Jain Foundation Inc

The Jain Foundation's mission is to identify treatments for Dysferlinopathy also known as LGMD2B/R2 or Miyoshi Myopathy ORCHESTRATING A CURE FOR DYSFERLINOPATHY The Jain Foundation is singularly focused on finding a cure for dysferlinopathy also referred to as LGMD2B LGMDR2 Miyoshi Myopathy 1 ORCHESTRATINGA CURE FORDYSFERLINOPATHY The Jain Foundation is singularly focused on finding a cure for dysferlinopathy also referred to as LGMD2B LGMDR2 Miyoshi Myopathy 1 WHAT IS DYSFERLINOPATHY.

Social Rank

9900

Location

Seattle

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Community Rebuilding
  • Professional Societies & Associations

  • 92.

Suneel Research Foundation

Our mission is to spread awareness about Duchenne Muscular Dystrophy (DMD), raise funds to support treatments and find a cure for DMD.

Social Rank

490

Location

Buffalo

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Community Rebuilding
  • Diseases, Disorders, Medical Disciplines N.E.C.

  • 93.

LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC

Patient-driven solutions for complex lymphatic anomalies: GLA, GSD, KLA, CCLA • Support-Research-Education • Somatic mutations PIK3/mTor & RAS/MAPK pathways Patient advocacy group dedicated to patient driven solutions for complex lymphatic anomalies We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.

Social Rank

2896

Location

Saint Petersburg

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Community Rebuilding

Celebrate Dyslexia

On a mission to celebrate, educate and empower the one in five with dyslexia.

Social Rank

1000

Location

San Antonio

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 95.

Shwachman-Diamond Syndrome Alliance Inc

Shwachman-Diamond Syndrome Alliance is a nonprofit aimed at accelerating research and therapy development for this rare disease.

Social Rank

954

Location

Woburn

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Community Rebuilding
  • Nonmonetary Support N.E.C.*

  • 96.

Myasthenia Gravis Holistic Society Inc

Empower patients and Improve life with myasthenia gravis.

Location

Decatur

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Community Rebuilding
  • Mental Health Disorders

  • 97.

Lauren Marie Levert Foundation To Cure Schizophrenia Inc

THE LAUREN MARIE LEVERT FOUNDATION IS DEDICATED TO FUNDING THE RESEARCH AND CURE FOR SCHIZOPHRENIA.

Location

Lake Forest

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 98.

KIF1A.ORG

We connect families affected by KIF1A and relentlessly work to accelerate research.

Social Rank

5883

Location

New York

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 99.

THE CHAMP FOUNDATION

Mission The Champ Foundation supports research toward better treatment and a cure for single largescale mitochondrial deletion syndromes SLSMDS like Pearson syndrome.

Location

DURHAM

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