• Epilepsy

• 127.

Epilepsy Study Consortium Inc

Home Our Mission The Epilepsy Study Consortium TESC is a group of scientific investigators from academic medical research centers who are dedicated to accelerating the development of new therapies in epilepsy to improve patient care.

Smith-Lemli-Opitz Foundation

The Smith-Lemli-Opitz Foundation is a non-profit organization dedicated to supporting families, individuals and professionals dealing with Smith-Lemli-Opitz.

Cloves Syndrome Community

Support, Research & Education to improve the quality of life for ppl with CLOVES.

• Fund Raising and/or Fund Distribution

• 130.

COALITION TO CURE CHD2 INC

Fighting for our kiddos, and others, with CHD2-related neurodevelopmental disorders.

• Human Service Organizations

• 131.

Hidradenitis Suppurativa Foundation

We are the Hidradenitis Suppurativa Foundation - a 501(c)(3) nonprofit dedicated to improving the quality of life for individuals living with HS.

• Nerve, Muscle, and Bone Diseases

• 132.

Bodor Research Foundation

THE PRIMARY ACTIVITY OF BODOR RESEARCH FOUNDATION IS THE FURTHERANCE OF CHARITABLE, SCIENTIFIC, AND ADVANCEMENT OF EDUCATION AND SCIENTIFIC PURPOSES, THROUGH RESEARCH PROJECTS TO DEVELOP AND TEST ALTERNATE TECHNIQUES FOR TREATMENT OF NEUROMUSCULAR AND MUSCULOSKELETAL DISORDERS, AND BY PUBLISHING PAPERS ON THE FINDINGS.

• Specifically Named Diseases Research

• 133.

Cure Szt2

Cure SZT2 is a non-profit organization dedicated to families affected by the genetic mutation SZT2.

Lcc Foundation Inc

The LCC Foundation’s MISSION is to help families across the United States and beyond diagnosed with Leukoencephalopathy with Brain Calcifications and Cysts (LCC) by giving them the resources they need to fight this rare and devastating disease.

FA PROJECT INC

The FA Project is committed towards creating awareness of Friedreichs Ataxia a life altering disease.