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Similar organisations to EHLERS-DANLOS SOCIETY

Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 118.

NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC

National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

Social Rank

607

Location

Boston

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Community Rebuilding

Smith-Lemli-Opitz Foundation

The Smith-Lemli-Opitz Foundation is a non-profit organization dedicated to supporting families, individuals and professionals dealing with Smith-Lemli-Opitz.

Social Rank

120

Location

Fargo

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Community Rebuilding
  • Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

  • 120.

INTERNATIONAL CHILDRENS ANOPHTHALMIA NETWORK INC

ICAN a voluntary not for profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anopthalmia and associated genetic counseling.

Location

Philadelphia

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Community Rebuilding
  • Human Service Organizations

  • 121.

Stickler Involved People Inc

Thank you Pat and Bill Houchin for all you have done for the Stickler Community over the years.

Location

Augusta

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Community Rebuilding

Cure LBSL

LBSL is a degenerative brain/spinal cord disease.

Social Rank

2400

Location

ARLINGTON

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Community Rebuilding

Connective Tissue Coalition, Inc

Empowering Progress; Inspiring Hope Our Mission: The Connective Tissue Coalition (CTC) drives research, raises awareness, and provides resources for individuals affected by Ehlers-Danlos, Marfan, and Loeys-Dietz Syndromes.

Social Rank

891

Location

Winthrop

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 124.

Springer Family Foundation Inc

Extra To Love aims to empower the Trisomy 13 and 18 communities through connection, financial support and education.

Location

Justin

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Community Rebuilding
  • Brain Disorders

  • 125.

DYSTONIA MEDICAL RESEARCH FOUNDATION

Our mission is to advance research for improved dystonia treatments and a cure, promote awareness, and support the well being of affected individuals.

Social Rank

19942

Location

Chicago

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 126.

DHPS FOUNDATION

Leading the way in DHPS Deficiency Disorder research and education in order to find treatment, and a cure #curedhps #raredisease Our genetics make us unique our struggles and triumphs unite us.

Social Rank

98

Location

RESTON

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