Similar organisations to EHLERS-DANLOS SOCIETY
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Birth Defects, Genetic Diseases
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118.
NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC
National Tay-Sachs & Allied Diseases Association (NTSAD) leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases.
607
Boston
Smith-Lemli-Opitz Foundation
The Smith-Lemli-Opitz Foundation is a non-profit organization dedicated to supporting families, individuals and professionals dealing with Smith-Lemli-Opitz.
120
Fargo
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Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.
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120.
INTERNATIONAL CHILDRENS ANOPHTHALMIA NETWORK INC
ICAN a voluntary not for profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anopthalmia and associated genetic counseling.
Philadelphia
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Human Service Organizations
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121.
Stickler Involved People Inc
Thank you Pat and Bill Houchin for all you have done for the Stickler Community over the years.
Augusta
Cure LBSL
LBSL is a degenerative brain/spinal cord disease.
2400
ARLINGTON
Connective Tissue Coalition, Inc
Empowering Progress; Inspiring Hope Our Mission: The Connective Tissue Coalition (CTC) drives research, raises awareness, and provides resources for individuals affected by Ehlers-Danlos, Marfan, and Loeys-Dietz Syndromes.
891
Winthrop
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Birth Defects, Genetic Diseases
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124.
Springer Family Foundation Inc
Extra To Love aims to empower the Trisomy 13 and 18 communities through connection, financial support and education.
Justin
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Brain Disorders
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125.
DYSTONIA MEDICAL RESEARCH FOUNDATION
Our mission is to advance research for improved dystonia treatments and a cure, promote awareness, and support the well being of affected individuals.
19942
Chicago
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Fund Raising and/or Fund Distribution
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126.
DHPS FOUNDATION
Leading the way in DHPS Deficiency Disorder research and education in order to find treatment, and a cure #curedhps #raredisease Our genetics make us unique our struggles and triumphs unite us.
98
RESTON






