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Similar organisations to EHLERS-DANLOS SOCIETY

Community Rebuilding
  • Single Organization Support

  • 172.

INTERNATIONAL WAGR SYNDROME ASSOCIATION

The IWSA represents more than 350 members in 45 countries around the world The mission of the International WAGR Syndrome Association is to promote awareness, stimulate research, and support families affected by WAGR syndrome.

Social Rank

1600

Location

Montgomery Village

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 173.

Forest Hills Educational Foundation

The European Network of Patient Organizations for inherited lipid conditions #FindFH #FindHoFH #FindLpa #FindFCS Working together to provide a stronger future for individuals and families with FH and other forms of inherited/genetic dislipidemias.

Social Rank

2820

Location

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Community Rebuilding

American Neuromuscular Foundation

With your help, the American Neuromuscular Foundation (ANF) can fund research that will improve the lives of patients with neuromuscular diseases.

Social Rank

842

Location

Rochester

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Community Rebuilding
  • Professional Societies & Associations

  • 175.

Greater Louisville Medical Society

Promoting the science, art & profession of medicine.

Social Rank

1860

Location

Louisville

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Community Rebuilding
  • Specifically Named Diseases

  • 176.

Pmd Foundation A New Jersey Non Profit Corporation

#Research #Awareness #Advocacy & #FamilySupport for those with #PelizaeusMerzbacherDisease #PMD #newbornscreening #raredisease #leukodystrophy #myelin The PMD Foundation is a 501(c)3 non-profit organization formed to serve three distinct interest groups as they relate to Pelizaeus-Merzbacher Disease: The Children and Families, the General Public, the Researchers and Clinicians.

Social Rank

1616

Location

Marlton

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 177.

International FOXP1 Foundation

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.

Social Rank

521

Location

Mendenhall

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 178.

International Association of Sickle Cell Nurses and Physician ASSISTAN

International Association of Sickle Cell Nurses and Professional Associates IASCNAPA PROVIDES A PLATFORM FOR NURSES, NURSE PRACTITIONERS, PHYSICIAN ASSISTANTS SOCIAL WORKERS, SICKLE CELL ADVOCATES, AND OTHER HEALTHCARE PROFESSIONALS CARING FOR INDIVIDUALS WITH SICKLE CELL DISEASE TO IMPROVE THE CARE OF PEOPLE WITH SICKLE CELL DISEASE Home Who We Are Membership Scholarships Events Contact More Join us in the fight against Sickle Cell Disease We are dedicated nurses and professionalassociates striving to improve the lives of Sickle Cell Warriors.

Social Rank

120

Location

Drummonds

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Community Rebuilding
  • Rehabilitative Medical Services

  • 179.

ORTHOPAEDIC INSTITUTE FOR CHILDREN

The mission of Orthopaedic Institute for Children (formerly Orthopaedic Hospital) is to provide outstanding care for patients with musculoskeletal disorders and through the support of the Orthopaedic Institute for Children Foundation, to provide care for children regardless of ability to pay and advance care worldwide for all musculoskeletal patients through medical education and scientific research.

Location

Los Angeles

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Community Rebuilding
  • Specifically Named Diseases

  • 180.

RAISIN FOR RETT FOUNDATION

We fund multiple high-quality organizations working on behalf of those with Rett Syndrome and related disorders.

Social Rank

153

Location

DE PERE

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