• Alliance/Advocacy Organizations

• 190.

CONGENITAL HYPERINSULINISM INTERNATIONAL

Improving the lives of babies, children, and adults with hyperinsulinism (HI) by supporting HI families, research, and awareness to prevent brain damage & death CHI is dedicated to improving the lives of people living with Congenital Hyperinsulinism.

FAMILIAL DYSAUTONOMIA NOW FOUNDATION

FD NOW is a 501c3 non-profit organization dedicated to funding the fast-track research at the Laboratory for Familial Dysautonomia Research at Fordham University in New York, USA.

Cystinosis Research Foundation

The Cystinosis Research Foundation’s (CRF) mission is to find better treatments and a cure for cystinosis, a rare genetic disease that destroys every organ.

• Epilepsy

• 193.

Where Theres A Will Theres A Cure

We are going to cure X-Linked Myotubular Myopathy.

• Fund Raising and/or Fund Distribution

• 194.

Greater Louisville Medical Society Foundation Inc

Promoting the science, art & profession of medicine.

• Neurology, Neuroscience

• 195.

Inadcure Foundation Inc

The INADcure Foundation is a 501c3 nonprofit charity whose mission is to support the development of treatments, including a cure, for Infantile Neuroaxonal Dystrophy (INAD) and other forms of PLA2G6-related neurodegeneration (PLAN).

• Specifically Named Diseases

• 196.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

• Specifically Named Diseases

• 197.

XIA-GIBBS SOCIETY INC

Xia-Gibbs Society is a US based non-profit.

• Science, General (includes Interdisciplinary Scientific Activities)

• 198.

Autumn Immunology Conference Inc

We are a nonprofit organization, governed by an Executive Council, a group of dedicated volunteers w Chicago Illinois JOIN US FOR AIC2025 Nov.