• Alliance/Advocacy Organizations

• 208.

Wilson Disease Association

Wilson disease is a genetic disorder of having excessive copper accumulation in the liver or brain that is fatal unless detected and treated Welcome to the official fan page of The Wilson Disease Association International.

CURED NFP

CURED is a not for profit foundation dedicated to those suffering from Eosinophilic Gastrointestinal Diseases (EGID), including eosinophilic esophagitis (EoE),.

• Alliance/Advocacy Organizations

• 210.

PCD KS FOUNDATION

Working together to find a cure and improve care for those with ciliary disorders and their families by increasing awareness, research and support.

• Specifically Named Diseases Research

• 211.

Selective Mutism Research Institute

The SMart Center is a comprehensive Selective Mutism treatment center directed by Dr.

• Birth Defects, Genetic Diseases

• 212.

Southeastern Rett Syndrome Alliance

TO DEVELOP UNDERSTANDING AND AWARENESS OF RETT SYNDROME; TO PROMOTE THE GENERAL WELFARE OF THOSE WITH RETT SYNDROME; TO ASSIST IN IDENTIFYING PERSONS WITH RETT SYNDROME; TO SUPPORT FAMILIES IN COPING WITH THE DISORDER, AND CONDUCT ACTIVITIES AIMED AT PREVENTION, TREATMENT AND ERADICATION OF RETT SYNDROME Be sure to grab some Awareness Items in the Research Dr.

• Epilepsy

• 213.

Lilys Fund for Epilepsy Research Inc

We support #epilepsy research at @UWMadison, hosting the annual #LilysLuau where you can #GetYourHulaOn for the #1in26.

• Public Health Programs

• 214.

Parkinsons Connection of Central New Mexico

THE PARKINSONS CONNECTION IS AN ORGANIZATION SERVING CENTRAL NEW MEXICO.

• Specifically Named Diseases

• 215.

MACKENZIES MISSION

Closing the healthcare educational gap about #amyloidosis through patient educators; focused on future and current medical providers.

• Birth Defects, Genetic Diseases

• 216.

HNRNP FAMILY FOUNDATION

Nonprofit dedicated to serving those impacted by HNRNP-Related Rare Neurodevelopmental Disorders through supporting community and research Home Donate Events Learn Projects Join our Registry Join our Researcher Registry Shop Contact and Connect Submit your story HNRNPC Item HNRNPH1RNDD HNRNPH2RNDD More Our Mission The HNRNP Family Foundation is dedicated to improving the lives of patients and families around the world that live with rare HNRNPRelated Neurodevelopmental Disorders HNRNPRNDDs.