Spastic Paraplegia Foundation, Inc.

Hereditary Spastic Paraplegia #hsp & Primary Lateral Sclerosis #pls together we are #HSPandPLS The Spastic Paraplegia Foundation is committed to promoting research to find cures for Hereditary Spastic Paraplegia and Primary Lateral Sclerosis, to educating people and their families affected by these conditions to help them live full and productive lives and to creating opportunities for mutual support and sharing.

• Public Foundations

• 38.

BARTH SYNDROME FOUNDATION INC

Barth Syndrome Foundation - saving lives through education, advances in treatments, and finding a cure for Barth syndrome.

THE MARFAN FOUNDATION INC .

The Marfan Foundation works to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions.

• Professional Societies & Associations

• 40.

Friends of the Goldlab Symposium

Videos from the 2015 GoldLab Symposium are now online.

• Nonmonetary Support N.E.C.*

• 41.

Curedrpla Inc

I’m a parent advocate for DRPLA, a rare genetic disease.

• Specifically Named Diseases Research

• 42.

Sleep Consortium

Sleep Consortium accelerates next-generation research and therapy development for Central Disorders of Hypersomnolence through a data collection ecosystem.

• Alliance/Advocacy Organizations

• 43.

Ctx Alliance NFP

Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease.

• Alliance/Advocacy Organizations

• 44.

APFED

American Partnership for Eosinophilic Disorders, APFED.

• Alliance/Advocacy Organizations

• 45.

LGMD AWARENESS FOUNDATION INC

Advocating - Educating - Celebrating limb-girdle muscular dystrophy (LGMD) MeetGirdie LGMD Awareness Day Toolkit Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limbgirdle muscular dystrophy LGMD and champion the cause for improved access to diagnosis care and treatment for those living with this condition.