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Similar organisations to EHLERS-DANLOS SOCIETY

Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 28.

Dravet Syndrome Foundation, Inc.

The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.

Social Rank

18554

Location

Cherry Hill

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 29.

Curefa Foundation Inc

CUREFA FOUNDATION FUNDS CAPITAL INTENSIVE PROJECTS GATED WITH SUCCESS MILESTONES, LEVERAGING NOVEL TOOLS OF SCIENTIFIC RESEARCH FOR THE TREATMENT AND CURE OF FRIEDREICH'S ATAXIA.

Location

Port Washington

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Community Rebuilding
  • Brain Disorders

  • 30.

JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION

The Joubert Syndrome & Related Disorders Foundation supports those affected by Joubert syndrome and related disorders.

Social Rank

4737

Location

Rocky River

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Community Rebuilding
  • Research Institutes and/or Public Policy Analysis

  • 31.

Forgotten Diseases Research Foundation

THE FORGOTTEN DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS.

Location

Santa Clara

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 32.

International Rett Syndrome Association, Inc.

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

Social Rank

32001

Location

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Community Rebuilding
  • Specifically Named Diseases

  • 33.

Jansens Foundation

Founder & Executive Director of The Jansen's Foundation.

Social Rank

2328

Location

ELKHORN

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 34.

Iqsec2 Research and Advocacyfoundation

Welcome to IQSEC2. ORG Research and Advocacy Foundation MISSION STATEMENT Vision In the next 10 years we will dramatically improve the quality of life for those affected by IQSEC2 mutations through 1 the establishment and dissemination of standard treatment and therapy protocols to medical practitioners and therapists worldwide 2 support of research and development of new and innovative treatments for IQSEC2 related diseases and 3 uplift support all loved ones of those affected by IQSEC2 through an advocate community and its allies.

Location

Frisco

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 35.

ADLD CENTER

The ADLD Center is focused on raising awareness about Autosomal Dominant Leukodystrophy ADLD and developing a network of clinicians researchers patients and their caregiversadvocates in order to raise funds as we move forward towards finding a cure.

Location

TROY

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Community Rebuilding
  • Down's Syndrome

  • 36.

LUMIND IDSC FOUNDATION

We accelerate research to improve health for all with Down syndrome & empower families with support.

Social Rank

237486

Location

WOBURN

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