HSAN1E Society

Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

Center for Ehlers Danlos Syndrome Alliance Inc

Proudly helping those who have EDS and bring awareness to the condition.

• Patient Services�Entertainment, Recreation

• 3.

EDS Guardians, Inc

World's 1st patient-to-patient "pay-it-forward" 501(c)(3) nonprofit charity that helps Ehlers-Danlos Syndromes patients who lack support and need vital care.

Ehlers-Danlos Research Foundation

We strive to promote evidence-based Neuromuscular and Musculoskeletal medicine for Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorder.

• Alliance/Advocacy Organizations

• 5.

Edskc Collaboration Inc

Home What is EDS. About EDSKC Events Contact More What is EDSKC Collaboration Inc.

• Alliance/Advocacy Organizations

• 6.

Jansen De Vries Syndrome Foundation

The Jansen de Vries Syndrome (JdVS) Foundation is a nonprofit, tax-exempt organization as defined in section 501(c)(3) of the Internal Revenue Code and, as such, contributions to JdVS Foundation are tax-deductible.

• Specifically Named Diseases

• 7.

Eds Resource Network

EDS Resource Network (EDSRN), a 501(c)(3) nonprofit of Utah, provides aid, education, and support to the Ehlers-Danlos Syndromes (EDS) patients, caregivers, and medical providers across the state.

• Specifically Named Diseases Research

• 8.

Dion Foundation for Children with Rare Diseases Inc

Support research. Find a cure. Help children and families fight rare diseases.

• Other Medical Research N.E.C.

• 9.

FRIEDREICH'S ATAXIA RESEARCH ALLIANCE

Together, we will cure Friedreich's ataxia.