• Single Organization Support

• 37.

Maghreb-American Health Foundation Inc

Improving Health, Changing lives, one Child at a time - www.

Prader-Willi Syndrome Association | USA

What’s YOUR story. Tweet us and tell us what it’s like #GrowingUpRare We hope you will suggest the PWSA | USA facebook page to your friends.

• Specifically Named Diseases

• 39.

Pmd Foundation A New Jersey Non Profit Corporation

#Research #Awareness #Advocacy & #FamilySupport for those with #PelizaeusMerzbacherDisease #PMD #newbornscreening #raredisease #leukodystrophy #myelin The PMD Foundation is a 501(c)3 non-profit organization formed to serve three distinct interest groups as they relate to Pelizaeus-Merzbacher Disease: The Children and Families, the General Public, the Researchers and Clinicians.

AMOUR SCIENCE FOUNDATION

Amour means ‘Resilient’ in Armenian and ‘Love’ in French.

• Birth Defects, Genetic Diseases Research

• 41.

Rare Olive Org Inc

Our mission is to push forward the scientific understanding and treatment options for a rare neurodevelopmental disorder.

• Specifically Named Diseases

• 42.

Jansens Foundation

Founder & Executive Director of The Jansen's Foundation.

• Specifically Named Diseases

• 43.

The Kennedy Ladd Foundation, Inc.

The Kennedy Ladd Foundation is committed to ending the suffering caused by MPS1, a progressive and life-threatening disease.

• Patient Services�Entertainment, Recreation

• 44.

SITOSTEROLEMIA FOUNDATION

Sitosterolemia Foundation Home About us About Sitosterolemia Resources Events FAQ Contact Us More Supporting families and individuals with Sitosterolemia Sitosterolema Foundation is a nonprofit organization dedicated to supporting families individuals and professionals dealing with Sitosterolemia a rare sterol disease.

• Birth Defects, Genetic Diseases

• 45.

DESSH

Join the DeSantoShinawi SyndromePATIENT REGISTRYpowered by About Us DESSH Syndrome News Events Get Involved Legal and Privacy More DESSH is short forDeSantoShinawi Syndrome.