• Single Organization Support

• 91.

INTERNATIONAL WAGR SYNDROME ASSOCIATION

The IWSA represents more than 350 members in 45 countries around the world The mission of the International WAGR Syndrome Association is to promote awareness, stimulate research, and support families affected by WAGR syndrome.

Hereditary Disease Foundation

The official Twitter feed of the Hereditary Disease Foundation.

The LAM Foundation

Delivering facts about #LAM #RareDisease and The LAM Foundation.

• Nerve, Muscle, and Bone Research

• 94.

Lgmd2L Foundation

We’re a nonprofit searching for a cure for LGMD2L, a rare disease that causes muscle weakness and atrophy, pain, and eventually leads to many sufferers being unable to walk.

• Specifically Named Diseases Research

• 95.

Plasminogen Deficiency Foundation

A 501(c)(3) public charity dedicated to improving the lives of patients with plasminogen deficiency (PLGD).

Beck Fahrner Syndrome Foundation

Our mission is to accelerate full spectrum research to cure Beck-Fahrner Syndrome (TET3 deficiency) and to empower affected families with information, knowledge, and connectivity.

• Fund Raising and/or Fund Distribution

• 97.

Birds for Sofia Inc

We support children diagnosed with rare, inheritable diseases from Eastern Europe.

• Alliance/Advocacy Organizations

• 98.

flok Health

Redefining clinical care and research priorities in metabolic health through the power of patient data.

• Medical Specialty Research

• 99.

FIBROMUSCULAR DYSPLASIA SOCIETY OF

The recognized leader in the support of Fibromuscular Dysplasia (FMD) awareness, education and research.