Spastic Paraplegia Foundation, Inc.

Hereditary Spastic Paraplegia #hsp & Primary Lateral Sclerosis #pls together we are #HSPandPLS The Spastic Paraplegia Foundation is committed to promoting research to find cures for Hereditary Spastic Paraplegia and Primary Lateral Sclerosis, to educating people and their families affected by these conditions to help them live full and productive lives and to creating opportunities for mutual support and sharing.

• Museums & Museum Activities

• 65.

Prader Willi Association of New England Inc

PWS is a non-inherited genetic disorder which is associated with a random deletion of the 15th chromosome.

• Surgery

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Paley Foundation Inc

The Paley Foundation seeks to improve the lives of children and adults throughout the nation and the world who suffer from congenital, genetic, developmental and post-traumatic orthopedic conditions.

• Fund Raising and/or Fund Distribution

• 67.

Ssadh Association Inc

SSADH IS AN ORGANIZATION REPRESENTING CHILDREN AND FAMILIES AFFECTED BY A DISEASE OF GABA RELATED NEUROTRANSMITTER METABOLISM.

• Fund Raising and/or Fund Distribution

• 68.

HUNTER SYNDROME FOUNDATION

The Hunter Syndrome Foundation is a 501(c)3 non-profit corporation with a mission to fund potential therapies that will ultimately find a cure for this disorder.

• Fund Raising and/or Fund Distribution

• 69.

Gardaccess Inc

Accelerating access to quality healthcare Addressing Unmet Needs in Rare Diseases Access to lifesaving medicine programs in low and middleincome countries LMIC presents a significant unmet need for patients living with rare disorders.

Myhre Syndrome Foundation

Myhre Syndrome Foundation is dedicated to serving Myhre syndrome families by providing a network of hope and support.

• Specifically Named Diseases Research

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Cacp Research Foundation

Our Mission Awareness. Research. Cure.

• Birth Defects, Genetic Diseases

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Skraban-Deardorff Syndrome Foundation

The Skraban-Deardorff Syndrome Foundation has been formed by parents and medical professionals worldwide to foster relationships and organize resources to benefit individuals with Skraban-Deardorff Syndrome.