Similar organisations to SOFT BONES INCTHE US
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Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.
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19.
LYMPHATIC MALFORMATION INSTITUTE
TO IDENTIFY, ORGANIZE AND FUND RESEARCH AND STUDIES TO ADVANCE THE UNDERSTANDING OF THE HUMAN LYMPHATIC SYSTEM AND ITS MALFORMATIONS LMI Our Impact Research Funding To Date 8000000 in research grants Research Publications 20 publications resulting from 45 funded projects and presentations conducted by 36 investigators Research Network 40 investigatorsover 10 countries represented Complex Lymphatic Anomaly CLA is an umbrella term encompassing four overlapping but distinct rare diseases of the lymphatic system Gorham Stout Disease GSD Generalized Lymphatic Anomaly GLA Kaposiform Lymphangiomatosis KLA and Central Conducting Lymphatic Anomaly CCLA.
Bethesda
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Birth Defects, Genetic Diseases
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20.
Gene Spotlight Inc
We are a nonprofit medical research and advocacy organization committed to spark breakthroughs in treatments and cures for rare genetic disorders, including lysosomal storage diseases, uncommon cancers and other orphan diseases.
MIAMI
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Specifically Named Diseases Research
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21.
The Snow Foundation
A voice for rare disease, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss neurodegeneration.
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Clayton
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Specifically Named Diseases
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22.
Wylder Nation Foundation
WARRIORS in the Fight Against Lysosomal Storage Disorders.
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Scottsdale
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Specifically Named Diseases
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23.
Abetalipoproteinemia and Related Disorders Foundation
Abetalipoproteinemia and Related Disorders Foundation is a non-profit, volunteer organization that provides guidance on needed scientific research, diagnosis, and management of abetalipoproteinemia and related hypolipidemias.
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Woodbury
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Health - General & Rehabilitative N.E.C.
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24.
Hereditary Neurological Disease Centre Inc
Official Twitter for Genentech. See our community guidelines here: https://t.
174505
Wichita
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Diseases, Disorders, Medical Disciplines N.E.C.
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25.
Rare Genes Movement
Our vision is to see every child have access to proper medical, therapeutic, and educational resourc Our purpose is to raise awareness and funds to help families of children with rare genetic disorder.
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Point Pleasant
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Birth Defects, Genetic Diseases
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26.
Cure SPG4 Foundation
Home About SPG4 About Us Research Resources Contact More.
San Antonio
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International Relief
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FRIENDS OF IPWSO
Friends of IPWSO raises money to improve the lives of children and adults who are born with Prader-Willi Syndrome.
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Eden Prairie