• Human Service Organizations

• 1.

Hermansky Pudlak Syndrome Network Inc

Hermansky-Pudlak Syndrome, a type of albinism that causes low vision as well as a bleeding disorder.

• Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

• 2.

LYMPHATIC MALFORMATION INSTITUTE

TO IDENTIFY, ORGANIZE AND FUND RESEARCH AND STUDIES TO ADVANCE THE UNDERSTANDING OF THE HUMAN LYMPHATIC SYSTEM AND ITS MALFORMATIONS LMI Our Impact Research Funding To Date 8000000 in research grants Research Publications 20 publications resulting from 45 funded projects and presentations conducted by 36 investigators Research Network 40 investigatorsover 10 countries represented Complex Lymphatic Anomaly CLA is an umbrella term encompassing four overlapping but distinct rare diseases of the lymphatic system Gorham Stout Disease GSD Generalized Lymphatic Anomaly GLA Kaposiform Lymphangiomatosis KLA and Central Conducting Lymphatic Anomaly CCLA.

• Medical Disciplines

• 3.

International Society of Bone and Soft Tissue Pathology Inc

INTERNATIONAL SOCIETY OF BONE AND SOFT TISSUE PATHOLOGY Events LINKS Pub MedUSCAPIntl Skeletal SocietyCTOSSARCSarcoma JournalSarcoma Prediction NomogramPath OutlinesSoft Tissue Join Membership is available to pathologists other physicians clinical scientists and pathologistsintraining aligned with the societys goals.

The Global Foundation for Peroxisomal Disorders

The GFPD's mission is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

• Alliance/Advocacy Organizations

• 5.

Osteopetrosis Society Inc

The OsteoPETrosis Society is dedicated to providing support, education and awareness for all forms of OsteoPETrosis (recessive, intermediate & dominant).

• Alliance/Advocacy Organizations

• 6.

HypoPARAthyroidism Association, Inc.

Independent non-profit devoted to helping those with ALL forms of hypoparathyroidism.

• Fund Raising and/or Fund Distribution

• 7.

DHPS FOUNDATION

Leading the way in DHPS Deficiency Disorder research and education in order to find treatment, and a cure #curedhps #raredisease Our genetics make us unique our struggles and triumphs unite us.

• Group Home (Long-Term, Primarily Assisted Living)

• 8.

Prader-Willi Homes of California

PraderWilli Syndrome Center France ABOUT PWS PraderWilli Syndrome PWS is a complex rare and random genetic disorder that affects one in twelve to fifteen thousand people.

• Student Services and Organizations

• 9.

THE NATIONAL OSTEONECROSIS FOUNDATION

Home Osteonecrosis Osteonecrosis of the Jaw Mission Statement More About Us Related Sites Questions Answers NONF Brochure LeggCalvePerthes Disease Brochure Membership Form NONF Newsletter Volunteers Needed Patient Questionnaire Find A Physician National Osteonecrosis Foundation P.