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Similar organisations to EHLERS-DANLOS SOCIETY

Community Rebuilding

BETTER UNDERSTANDING OF DOWN SYNDROME

Our purpose is to: Educate, inform and support families who have loved ones with Down syndrome.

Location

Lubbock

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Community Rebuilding
  • Professional Societies & Associations

  • 317.

International Society for Cns Clinical Trials and Methodology in

ISCTM promotes advances in trial design/ methodology for CNS therapeutics through partnership with academia, industry, government, policy-making and the public.

Social Rank

120

Location

Nashville

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Community Rebuilding
  • Hospitals and Primary Medical Care Facilities

  • 318.

Center for Medical Technology Policy

Center for Medical Technology Policy Home of #GPC (Green Park Collaborative), a multi-stakeholder forum developing #CoreOutcomeSets for clinical trial design.

Social Rank

423

Location

Baltimore

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 319.

GRACE ROSE FOUNDATION

Grace Rose is a young girl living with Cystic Fibrosis.

Location

Los Angeles

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Community Rebuilding

Solve ME/CFS Initiative, Inc.

Making ME/CFS, Long Covid & post-infection diseases widely understood, diagnosable, & treatable.

Social Rank

47045

Location

Glendale

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 321.

Elbowbumpkid Inc

Our mission is to provide families impacted by Type 1 Diabetes with the opportunity to connect, thrive, learn and grow despite the diagnosis.

Location

HIGGANUM

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 322.

Skraban-Deardorff Syndrome Foundation

The Skraban-Deardorff Syndrome Foundation has been formed by parents and medical professionals worldwide to foster relationships and organize resources to benefit individuals with Skraban-Deardorff Syndrome.

Location

Indian Trail

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 323.

Ava Grace Foundation

For UPD14 Home Ava Gracex27s Story Donate Families Caregivers Medical Professionals Upcoming Events More The Ava Grace Foundation Supporting Families Advancing Research of UPD14Uniparental Disomy of the 14th Chromosome Families Caregivers Information about UPD14 common signs and symptoms getting diagnosed and treatments.

Location

Athens

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Community Rebuilding
  • Education N.E.C.

  • 324.

ASSOCIATION FOR MOLECULAR PATHOLOGY INC

We provide global expertise in molecular testing that drives patient care.

Social Rank

9286

Location

ROCKVILLE

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