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Similar organisations to EHLERS-DANLOS SOCIETY

Community Rebuilding
  • Brain Disorders

  • 298.

VANISHING WHITE MATTER FOUNDATION

Our mission is to raise funds to support VWM Leukodystrophy specific research to help treat and cure this rare disease.

Location

Salt Lake City

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Community Rebuilding
  • Diseases, Disorders, Medical Disciplines N.E.C.

  • 299.

National Niemann-Pick Disease Foundation

National Niemann-Pick Disease Foundation The NNPDF offers support and guidance to families and patients of those affected by Niemann-Pick Dise Mission: We are a non-profit group dedicated to supporting and empowering patients and families affected by Niemann-Pick disease through education, collaboration and research.

Social Rank

1482

Location

Fort Atkinson

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Community Rebuilding

OPMD Association

Advocates for Oculopharyngeal Muscular Dystrophy.

Social Rank

1244

Location

San Antonio

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Community Rebuilding
  • Specifically Named Diseases Research

  • 301.

Foundation To Eradicate Duchenne Inc

Dining Away Duchenne, a premiere charity event with DC chefs is on September 25, 2018.

Social Rank

115

Location

Alexandria

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Community Rebuilding
  • Diseases, Disorders, Medical Disciplines N.E.C.

  • 302.

Rare Genes Movement

Our vision is to see every child have access to proper medical, therapeutic, and educational resourc Our purpose is to raise awareness and funds to help families of children with rare genetic disorder.

Social Rank

722

Location

Point Pleasant

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 303.

Friends of Nicer

NICER consortium brings together clinicians and researchers in hematology, immunology, rheumatology, ID and genetics NICER.

Social Rank

111

Location

Ann Arbor

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Community Rebuilding

The Institute for Comprehensive Gender Dysphoria Research

TO CONDUCT, SUPPORT, AND COMMUNICATE GENDER DYSPHORIA RESEARCH TO BENEFIT THE PUBLIC AND TO ADVANCE A COMPREHENSIVE UNDERSTANDING OF GENDER DYSPHORIA THAT CONSIDERS THE DIVERSITY OF DEVELOPMENTAL PATHWAYS, TRAJECTORIES, AND TRANSITION OUTCOMES.

Location

Providence

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Community Rebuilding

MICKIE'S MIRACLES INC

Learn the History Behind Mickies Miracles Mickies Miracles advocated for parents to get their child an urgent diagnosis and the highest level of care at Level IV Pediatric Epilepsy Centers increased awareness about the catastrophic dangers of pediatric epilepsy and fought for legislative change to reduce barriers to care and research funding.

Location

GRAPEVINE

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Community Rebuilding

THE EPILEPSY FOUNDATION OF NORTHWESTERN

Mission of the Epilepsy Center of Northwest Ohio is to improve the lives of people affected by epilepsy and those with developmental disabilities The Mission of the Epilepsy Center of Northwest Ohio is to improve the lives of people affected by epilepsy and those with developmental disabilities.

Social Rank

1427

Location

MAUMEE

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