Pheo Para Patient Initiative Incorporated

Our Team Speakers Bureau Pheochromocytoma Paraganglioma Peer Support Newly Diagnosed Care Kits Clinical Care Guidelines Center of Excellence Program PatientFocused Research International Symposium on Pheo Peer Support 1 on 1 and monthly peer support meetings Center of Excellence Program Find an Experienced Medical Team learn more Pheo Para Educational Video Library help others Pheo Para Alliance NEWS EVENTS keeping you up to date 2025 Rare Disease Day Posted on 25th February 2025 Nominate a Phriend for a 2025 Volunteer Award.

• Fund Raising and/or Fund Distribution

• 344.

Lyme Disease Association, Inc.

After difficult and heartfelt reflection, the Board of Directors has decided to close the Lyme Disease Association, Inc.

• Specifically Named Diseases

• 345.

NATIONAL UREA CYCLE DISORDERS FOUNDATION

Nonprofit supporting patients & families affected by urea cycle disorders.

DR JOHN E UPLEDGER FOUNDATION INC

The Dr. John E. Upledger Foundation is dedicated to the preservation and perpetuation of Dr.

• Fund Raising and/or Fund Distribution

• 347.

The Stiff Person Syndrome Research Foundation

Finding a cure for Stiff Person Syndrome through RArE: Research, Awareness, and Education.

• Fund Raising and/or Fund Distribution

• 348.

The Telomere Project

The Telomere Project is dedicated to funding lifesaving efforts for those affected by telomere syndromes, in particular, idiopathic pulmonary fibrosis IPF The Telomere Project is dedicated to funding lifesaving efforts for those affected by telomere syndromes TS in particular those which result in shortened telomeres or low telomere promotion.

• Diseases of Specific Organs

• 349.

Lets Talk Menopause Inc

Let’s Talk Menopause is a nonprofit invested in changing the conversation around menopause, so women are empowered to get the information they need and the support they deserve.

• Digestive Diseases, Disorders

• 350.

International Association for Muscle Glycogen Storage Disease

IamGSD aims to enhance the quality of life of people affected by muscle glycogen storage disease through advocacy, support, and research.

• Public Foundations

• 351.

PHILLY CURE HD INC

501c3 Non-profit supporting the local Huntington's disease community.