Congenital Adrenal Hyperplasia Research Educ & Support Found Inc. aka CARES Foundation

Nonprofit organization committed to improving the lives of families and individuals affected by Congenital Adrenal Hyperplasia (CAH) Learn about Congenital Adrenal Hyperplasia and how CARES Foundation can help.

• Birth Defects, Genetic Diseases

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SHINE Syndrome Foundation Inc

DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Our mission is to improve the quality of life for children and families impacted by DLG4 SHINE through supporting collaborative research among international medical professionals, nurturing a family community, and raising worldwide awareness.

Ellie Ruby Foundation Inc

Our mission is to bring smiles and support to families battling pediatric cancer Our mission is to bring smiles and support to families battling pediatric cancer.

Parkinsons Exercise and Wellness Center

The PEWC is the first Parkinson's-dedicated 501(c)(3) nonprofit exercise facility in the #KansasCity area.

Petronille Healthy Society

One of our most sacred beliefs is that every life matters.

Be Still Foundation Inc

To empower and uplift those with tremors, along with their families.

Lightning and Love Foundation

Founder of Lightning and Love foundation and mom to two ultra-rare THAP12 genetic epilepsy disease daughters searching for a cure.

• Epilepsy Research

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Shay Emma Hammer Research Foundation

We’re working to document the first 1000 cases of SCN8A gene variants and connect families Advancing epilepsy awareness.

• Human Services - Multipurpose & Other N.E.C.

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JORDANS GUARDIAN ANGELS

Twitter to share info & drive funding to enable additional research on PPP2R5D/Jordan’s Syndrome, PPP2R1A, & PPP2R5C.