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Similar organisations to DUP 15Q ALLIANCE

Community Rebuilding
  • Alliance/Advocacy Organizations

  • 28.

NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS

As many as 1 in 50 individuals show signs of Tourette Syndrome – most of them undiagnosed, misdiagnosed or misunderstood.

Social Rank

4618

Location

Somerville

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 29.

Tennessee Prader-Willi Association, Inc.

We provide support and information for people with PWS & their families.

Social Rank

640

Location

Nashville

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Community Rebuilding

Cystinosis Research Foundation

The Cystinosis Research Foundation’s (CRF) mission is to find better treatments and a cure for cystinosis, a rare genetic disease that destroys every organ.

Social Rank

5116

Location

Irvine

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Community Rebuilding

THE CLINIC FOR SPECIAL CHILDREN INC

A nonprofit comprehensive medical practice focused on treating & researching rare genetic disorders.

Social Rank

3100

Location

Intercourse

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 32.

Dravet Syndrome Foundation, Inc.

The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.

Social Rank

18554

Location

Cherry Hill

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Community Rebuilding

DDC CLINIC FOR SPECIAL NEEDS CHILDREN

DDC Clinic is a non-profit primary care, education, and research facility.

Social Rank

682

Location

Middlefield

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Community Rebuilding

PRADER-WILLI CALIFORNIA FOUNDATION

Our vision is a A Full Life Without Limits for everyone with Prader-Willi syndrome.

Social Rank

3400

Location

San Diego

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Community Rebuilding
  • Specifically Named Diseases Research

  • 35.

THE FOCUS FOUNDATION INC

OUR FOCUS:Helping children who have* X & Y Variations* Dyslexia * DyspraxiaEarly Identification + Tar Early Awareness Detection Treatment for X Y Chromosomal Variation Disorders X Y Chromosomal Disorders 47 XXY 47 XYY 47 XXX Learn more about them.

Social Rank

1754

Location

DAVIDSONVILLE

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 36.

HNRNP FAMILY FOUNDATION

Nonprofit dedicated to serving those impacted by HNRNP-Related Rare Neurodevelopmental Disorders through supporting community and research Home Donate Events Learn Projects Join our Registry Join our Researcher Registry Shop Contact and Connect Submit your story HNRNPC Item HNRNPH1RNDD HNRNPH2RNDD More Our Mission The HNRNP Family Foundation is dedicated to improving the lives of patients and families around the world that live with rare HNRNPRelated Neurodevelopmental Disorders HNRNPRNDDs.

Social Rank

162

Location

SEATTLE

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