PHEO ALLIANCE

Advocacy, awareness and support for those affected by #pheochromocytoma/ #paraganglioma The mission of the Pheo Para Alliance is to invest in research to accelerate treatments and cures while empowering patients, their families, and medical professionals through advocacy, education and a global community of support.

• Human Services - Multipurpose & Other N.E.C.

• 83.

Turtle Creek Valley Mental Health/Mental Retardation, Inc.

TCV provides a continuum of services, care and support that empowers individuals, families and communities with behavioral, mental health, substance abuse and/or developmental issues to sustain their recovery and achieve the important possibilities in their lives.

• Epilepsy

• 84.

Cure Ahc Foundation

Alternating Hemiplegia of Childhood (AHC) is a complex, ultra-rare neurological disease.

Decoding Developmental Epilepsies

We serve two distinct communities. First, we serve those living with SCN8A and their families.

• Alliance/Advocacy Organizations

• 86.

ALVEOLAR CAPILLARY DYSPLASIA ASSOCIATION

This ACDA site is the social media outreach for parents of ACD patients during any treatment phase and support system for those experiencing child loss.

• Birth Defects, Genetic Diseases Research

• 87.

PURA SYNDROME FOUNDATION

The PURA Syndrome Foundation is a global non-profit organisation.

PACIFIC NORTHWEST RESEARCH INSTITUTE

PNRI unravels the powerful mysteries of genetics to drive future medical breakthroughs.

• Human Services - Multipurpose & Other N.E.C.

• 89.

Prader-Willi Syndrome Arizona Association

Arizona families navigating PraderWilli syndrome together.

• Human Service Organizations

• 90.

Chd Tablet Talk Foundation

CHD TABLET TALK FOUNDATION® A 501c3 Nonprofit Organization Keeping children with complex congenital heart disease (CHD) connected and engaged by providing resources, education, support, and mentorship 💙❤️ © 2020 All rights reserved The CHD Tablet Talk mission is to keep children with complex CHD, who are experiencing lengthy hospital stays, connected and engaged while they battle their illness.