National Aphasia Association, Inc.

International PPA Awareness Day is April 4th Skip Links Resources For We advocate for people with aphasia and their families Aphasia is an acquired communication disorder that impairs a person039s ability to process language but does not affect intelligence.

The Paisley Foundation Inc

Raise awareness of Thanatophoric Dysplasia, financially support clinical research, and provide financial assistance and community resources to affected families Raise Awareness of Thanatophoric Dysplasia Financially Support Clinical Research and Provide Financial Assistance and Community Resources to Affected Families Building a Community to Support TD Families The foundations purpose is to raise awareness of Thanatophoric Dysplasia TD financially assist families both in their everyday lives and where insurancesocial programs fall short and to be a community resource for families present and future whose children have TD.

GILLETTE CHILDRENS SPECIALTY HEALTH CARE

We are a global beacon of care for patients with brain, bone and movement conditions.

The Global Foundation for Peroxisomal Disorders

The GFPD's mission is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

• Birth Defects, Genetic Diseases

• 104.

International Rett Syndrome Association, Inc.

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

• Birth Defects, Genetic Diseases Research

• 105.

Fam177a1 Research Fund

Founder and President, FAM177A1 Research Fund The mission of the FAM177A1 Research Fund is to improve the lives of those affected by FAM177A1 Associated Disorder through research and development of transformative therapies.

• Alliance/Advocacy Organizations

• 106.

Young Genetic Stroke Alliance

Raising awareness and educating the community on all things related to this rare disease.

Pediatric Epilepsy Research Consortium Inc

Our mission is to provide a network and infrastructure to facilitate collegial, collaborative, practice-changing research that will provide answers needed to improve the care of children with epilepsy.

• Fund Raising and/or Fund Distribution

• 108.

Tbc1D24 Foundation

Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.