Cornelia de Lange Syndrome Foundation, Inc.

Cornelia de Lange Syndrome, promoting research & providing support to individuals with CdLS & their families 860.

CPC Integrated Health

mental health, substance use recovery & specialized education Our Mission is to support individuals, families, and the community in achieving whole health through an integrated system of care designed to promote well-being, recovery, and productive lives.

• Housing Development, Construction, Management

• 147.

Penn Gardens Inc

Instilling hope. Inspiring change. Building community.

• Community Health Systems

• 148.

Delaware Health Sciences Alliance LLC

Collaborating across the health sciences for research, education, and service in Delaware.

• Family Services

• 149.

CO-OCCURRING DISORDERS INSTITUTE INC

Healthier Families, Stronger Kids, and a Continuum of Services that can Support Families in Need.

• Health - General & Rehabilitative N.E.C.

• 150.

4P-Support Group

Our mission is to serve our membership by providing information, education and support; uniting families, researchers, and professionals; and promoting awareness and understanding of 4p- syndrome, with Wolf-Hirschhorn Syndrome as the main condition, and the related 4th chromosome abnormalities.

• Birth Defects, Genetic Diseases

• 151.

BPAN WARRIORS

Community resources, research and CONNECTION for BPAN Warrior families (WDR45, NBIA, Rare Disease, Parkinsons, Dementia, Epilepsy, Neurodegeneration, Genetics) BPAN Warriors is a growing international community of individuals who have loved ones directly affec BPAN WARRIORS CONNECT COLLABORATE CURE HOME RESEARCH PATIENT RESOURCES OUR TRIBE OUR PARTNERS DONATE RARE POV BLOG More 414 909BPAN RAREX unveils plan to radically change data collection and sharing to accelerate advances for patients in rare disease How One Rare Disease Advocate Learned to Look Across Diseases Study Makes Economic Case for Benefits of Data Sharing to Improve Diagnosis and Treatment of Rare Disease Patients Harnessing Machine Learning to Improve Diagnosis and Treatment of Rare Diseases Making Collaboration the Rule Rather than the Exception Why Data Sharing Is Critical for Accelerating Progress in Rare Disease PatientPowered Registry Boosts the Study of a Rare Disease What is Data Governance.

International Rett Syndrome Foundation

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

• Birth Defects, Genetic Diseases

• 153.

DESSH

Join the DeSantoShinawi SyndromePATIENT REGISTRYpowered by About Us DESSH Syndrome News Events Get Involved Legal and Privacy More DESSH is short forDeSantoShinawi Syndrome.