• Specifically Named Diseases

• 163.

United Cerebral Palsy, Inc.

UCP's is dedicated to promoting the independence and full citizenship of people disabilities.

• Birth Defects, Genetic Diseases

• 164.

Nergg Inc

Raise awareness and educate regarding the effects of genetics on health 1977 2025Celebrating 48 Yearsof Education Collaboration and more.

Kcnq2 Cure Alliance Inc

Our promise is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 Raising awareness, educating, and advancing research for KCNQ2 Developmental and Epileptic Encephalopathy.

• Specifically Named Diseases

• 166.

Pmd Foundation A New Jersey Non Profit Corporation

#Research #Awareness #Advocacy & #FamilySupport for those with #PelizaeusMerzbacherDisease #PMD #newbornscreening #raredisease #leukodystrophy #myelin The PMD Foundation is a 501(c)3 non-profit organization formed to serve three distinct interest groups as they relate to Pelizaeus-Merzbacher Disease: The Children and Families, the General Public, the Researchers and Clinicians.

• Fund Raising and/or Fund Distribution

• 167.

The Telomere Project

The Telomere Project is dedicated to funding lifesaving efforts for those affected by telomere syndromes, in particular, idiopathic pulmonary fibrosis IPF The Telomere Project is dedicated to funding lifesaving efforts for those affected by telomere syndromes TS in particular those which result in shortened telomeres or low telomere promotion.

• Fund Raising and/or Fund Distribution

• 168.

Undiagnosed Diseases Network Foundation (UDNF)

Improving access to diagnosis, research, and care for all with undiagnosed and ultra-rare conditions.

• Child Abuse, Prevention of

• 169.

A Childs Place PA

ACP is a child advocacy center that uses a team of pediatricians, psychologists and child development specialists to assess the possibility of abuse.

• Nerve, Muscle, and Bone Diseases

• 170.

Lynk Up World (LUW)

Lynk Up • World (LUW) is on a mission to bring meaningful connection to children & families impacted by rare diseases through art, support and innovation.

• Specifically Named Diseases

• 171.

FOUNDATION FOR PRADER-WILLI

Foundation for Prader-Willi Research focused on treatments & cure for PWS Our Research FPWRs research programs aim to develop new therapies that will improve the health and wellbeing of those with PWS.