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Similar organisations to DUP 15Q ALLIANCE

Community Rebuilding

Community Youth Network, Inc

https://cyngrayslake. org/events/our-newsletter/ CYN's mission is to provide and expand access to comprehensive, quality mental health services, while increasing awareness and working to eliminate the stigma of mental health issues.

Social Rank

638

Location

Grayslake

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Community Rebuilding
  • Nonmonetary Support N.E.C.*

  • 56.

Curedrpla Inc

I’m a parent advocate for DRPLA, a rare genetic disease.

Social Rank

169

Location

Brooklyn

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 57.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

Social Rank

32

Location

New York

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 58.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

Location

San Antonio

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Community Rebuilding
  • Specifically Named Diseases

  • 59.

Project CASK

An innovative rare disease non-profit driving breakthroughs in treatments and a cure for CASK gene disorders.

Social Rank

502

Location

New York City

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Community Rebuilding

United MSD Foundation

Our mission is simple, yet powerful: To cure Multiple Sulfatase Deficiency.

Social Rank

11543

Location

Biloxi

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 61.

DHPS FOUNDATION

Leading the way in DHPS Deficiency Disorder research and education in order to find treatment, and a cure #curedhps #raredisease Our genetics make us unique our struggles and triumphs unite us.

Social Rank

98

Location

RESTON

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Community Rebuilding
  • Specifically Named Diseases

  • 62.

DON'T FORGET ME

•Dedicated to Finding a Cure or Medical Treatment for the rare disease BPAN.

Social Rank

897

Location

WEST BLOOMFIELD

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Community Rebuilding

THE NORTH AMERICAN SOCIETY FOR PEDIATRIC

The North American Society for Pediatric and Adolescent Gynecology.

Social Rank

1280

Location

MOUNT ROYAL

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