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Similar organisations to DUP 15Q ALLIANCE

Community Rebuilding
  • Museums & Museum Activities

  • 19.

Prader Willi Association of New England Inc

PWS is a non-inherited genetic disorder which is associated with a random deletion of the 15th chromosome.

Social Rank

1171

Location

North Reading

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Community Rebuilding
  • Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

  • 20.

INTERNATIONAL CHILDRENS ANOPHTHALMIA NETWORK INC

ICAN a voluntary not for profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anopthalmia and associated genetic counseling.

Location

Philadelphia

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Community Rebuilding
  • Epilepsy Research

  • 21.

Bridge the Gap

SYNGAP1 Foundation is a legacy page dedicated to preserving the work and mission of our 100% charitable nonprofit in the USA, focused on #SYNGAP1 To serve, educate and fund research for families coping with the effects of SYNGAP mutations.

Social Rank

2674

Location

Cypress

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Community Rebuilding

Prader-Willi Syndrome Association | USA

What’s YOUR story. Tweet us and tell us what it’s like #GrowingUpRare We hope you will suggest the PWSA | USA facebook page to your friends.

Social Rank

16178

Location

Legal name of organization: Prader-Willi Syndrome Association | USA

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 23.

The Children's Partnership

The Children’s Partnership (TCP) is a California advocacy organization advancing child health equity through research, policy and community engagement.

Social Rank

7435

Location

Los Angeles

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 24.

Project 8p Foundation

Project 8p aims to accelerate the translation of scientific research into therapies and treatment and advocate for the 8p community.

Social Rank

1500

Location

New York

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Community Rebuilding
  • Specifically Named Diseases

  • 25.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

Social Rank

1141

Location

Austin

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Community Rebuilding
  • Specifically Named Diseases

  • 26.

3Q29 Foundation

3q29 Foundation Creating a path to treatment for chromosome 3q29 syndromes through funding research communitybuilding and increasing access to information and resources.

Location

Woodcliff Lake

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Community Rebuilding
  • Hospitals and Primary Medical Care Facilities

  • 27.

COMMUNITY HEALTH CLINIC INC

Compassionate, Comprehensive & Coordinated Medical Genetics Care in Northern Indiana.

Social Rank

538

Location

TOPEKA

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