THE NEUROMUSCULAR DISEASE FOUNDATION

NDF is a nonprofit whose mission is to raise awareness and encourage testing for HIBM and to find a cure for neuromuscular diseases, including HIBM.

Interstitial Cystitis Association

Interstitial cystitis (IC) hub, patient educator, research & patient advocate, research funder, awareness raiser, source for all about bladder pain The ICA is the hub for the millions affected by interstitial cystitis (IC), urgency, frequency and bladder pain, as well as the providers and researchers working to improve the lives of IC patients.

• Nerve, Muscle, and Bone Diseases

• 255.

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

RSDSA's mission is to provide support, education, and hope to everyone affected by #CRPS / #RSD while we drive research to develop better treatment and a cure.

LEGACY OF ANGELS

The Mission of The Legacy of Angels Foundation, a 501 (c) (3) private giving family foundation established in 2008, is to improve the lives of children by working to promote the expansion of newborn screening, and to further education, awareness and research of Krabbe disease and Cystic Fibrosis to provide a better treatment and a cure.

• Specifically Named Diseases

• 257.

Wylder Nation Foundation

WARRIORS in the Fight Against Lysosomal Storage Disorders.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 258.

The Reid Foundation for Lupus

The Reid Foundation for Lupus is a 501(c)(3) dedicated to raising awareness, promoting research, and advocating for people living with lupus.

• Specifically Named Diseases

• 259.

Niemann-Pick Childrens Fund

Niemann-Pick Children's Fund, Inc. was organized in December of 2008 in order to raise awareness of Niemann-Pick Disease Type C and its affect on families in America; to raise money to promote research to find treatments or a cure for Niemann-Pick Disease Type C: and to provide support to individuals and families affected by this disease through existing channels.

• Nerve, Muscle, and Bone Research

• 260.

SOFT BONES INCTHE US

Hypophosphatasia education and support for families and caregivers with this rare metabolic bone disease.

• Professional Societies & Associations

• 261.

INTERNATIONAL BIOIRON SOCIETY

News Announcements posted January 10 2025 It is with great sadness that we send this email to inform you that our esteemed colleague Gary M.