• Birth Defects, Genetic Diseases

• 280.

Breathe the Morgan Lucas Schuldt Foundation for Cystic Fibrosis

TO ADVANCE THE EDUCATIONAL GOALS AND QUALITY OF LIFE OF CHILDREN AND ADULTS LIVING WITH CYSTIC FIBROSIS IN NJ.

Tyler Nicole Foundation

The Tyler Nicole Foundation will provide comfort and support to families who experienced the loss of a child or have a child with a life threatening illness.

• Birth Defects, Genetic Diseases

• 282.

Uba5 Foundation

This page is to help raise awareness and connect with others that have been diagnosed UBA5 gene mutation.

• Specifically Named Diseases

• 283.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

• Public Foundations

• 284.

TNPO2 Foundation

TNPO2 FOUNDATION WORKED TO ACCELERATE ACCESS TO A CURE FOR ANY "N-OF-1" PATIENT.

• Specifically Named Diseases

• 285.

GLOBAL DARE FOUNDATION

Do you have Refsum Disease. Defeat Adult Refsum Everywhere Global DARE Foundation Awarded Prestigious Chan Zuckerberg Initiatives Rare as One Program Grant We DARE toBelieve Driving research is at the center of what we do because we DARE to believe there is a cure for Adult Refsum Disease.

• Birth Defects, Genetic Diseases

• 286.

Therapies for Inherited Neuropathies Inc

Identifying and advancing research & therapies that bring solutions to CMT patients.

• Specifically Named Diseases

• 287.

MACKENZIES MISSION

Closing the healthcare educational gap about #amyloidosis through patient educators; focused on future and current medical providers.

• Fund Raising and/or Fund Distribution

• 288.

THE CHAMP FOUNDATION

Mission The Champ Foundation supports research toward better treatment and a cure for single largescale mitochondrial deletion syndromes SLSMDS like Pearson syndrome.