• Alliance/Advocacy Organizations

• 307.

CONGENITAL HYPERINSULINISM INTERNATIONAL

Improving the lives of babies, children, and adults with hyperinsulinism (HI) by supporting HI families, research, and awareness to prevent brain damage & death CHI is dedicated to improving the lives of people living with Congenital Hyperinsulinism.

• Nerve, Muscle, and Bone Research

• 308.

Joshuas Future of Promises Inc

Joshua’s Future Of Promises is a non-profit organization set up by Joshua Scoble’s family.

• Research Institutes and/or Public Policy Analysis

• 309.

International Pnh Interest Group

Cookie settings Save the Date. Paris France ESHEBMTEHAIPIG 3rd Translational Research Conference Bone Marrow Failure and Leukemia Predisposition Syndromes IPIG Friday Satellite Symposium at ASH Annual Meeting Exposition Our mission The mission of the International PNH Interest Group is to advance optimal treatment and care of people living with paroxysmal nocturnal hemoglobinuria PNH and related conditions to provide instruction information and training to health care providers and to help further research on new and effective treatment options and improved patient access to approved therapies and treatments.

• Human Service Organizations

• 310.

New Jersey Pediatric Patients Charitable Trust Fund Inc

PROVIDE FUNDING FOR THE ACQUISITION OF RECREATIONAL AND EDUCATIONAL EQUIPMENT AND SUPPLIES FOR SPECIAL NEEDS CHILDREN IN SOUTHERN NEW JERSEY.

Little Warrior Foundation Inc

To fund, and find a complete and permanent cure for childhood cancer, with a specific focus on Ewings Sarcoma Our Big Mission The relentless pursuit of a complete Permanent cure for Ewing sarcoma.

• Human Service Organizations

• 312.

Yoey S Hope Inc

PUBLIC EDUCATION AND AWARENESS ON WOLF-HIRSCHHORN SYNDROME AND CHARITABLE SUPPORT FOR FAMILIES OF CHILDREN WITH WOLF-HIRSCHHORN SYNDROME.

OPMD Association

Advocates for Oculopharyngeal Muscular Dystrophy.

• Birth Defects, Genetic Diseases

• 314.

Green Ivy Health Inc

WE HELP PATIENTSFIGHT vEDS FIGHT vEDS is a nonprofit organization dedicated to fighting and finding a treatment for vascular EhlersDanlos Syndrome.

• Alliance/Advocacy Organizations

• 315.

Finding Nori Foundation

The Finding Nori Foundation Home About Meet the Team Finding Joy Blog Resources Publications DONATE Contact Upcoming Events More Raising research funding for PAX5 and ALG13 related neurological disordersEmpowering families with ultra rare undiagnosed diseases to find answers Our Mission Our mission is to advance scientific research through fundraising and advocacy for ultra rare undiagnosed genetic disorders.