Cystic Fibrosis Foundation

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

• Alliance/Advocacy Organizations

• 20.

Hht Foundation International Inc

Cure HHT is the only organization in the US advocating for research, education and a cure for Hereditary Hemorrhagic Telangiectasia, Osler-Weber-Rendu Syndrome The official Facebook page for Cure HHT, the world's leading organization working to raise awareness The mission of the HHT Foundation International is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

• Birth Defects, Genetic Diseases

• 21.

Project 8p Foundation

Project 8p aims to accelerate the translation of scientific research into therapies and treatment and advocate for the 8p community.

• Alliance/Advocacy Organizations

• 22.

Trpm3 Foundation

Patient advocacy and support for those affected by #TRPM3 #ionchannel related disorders.

Malan Syndrome Foundation Inc

Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene.

• Birth Defects, Genetic Diseases Research

• 24.

Rory Belle Foundation

We are a family run foundation established to raise funding and awareness for a gene therapy cure for the NARS1 disease.

• Fund Raising and/or Fund Distribution

• 25.

Courageous Cousins

We are a 501(c)(3) non profit raising funds for cystic fibrosis research.

• Biological, Life Science Research (includes Marine Biology, Physiology, Biochemistry, Genetics, Biotechnology, etc.)

• 26.

Cystic Fibrosis Foundation Therapeutics Inc

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

• Medical Specialty Research

• 27.

Curemapk8Ip3 Foundation

Family support network for patients and their families affected by a gene mutation in MAPK8IP3 Page for individuals and families with gene variant MAPK8IP3 Improve the lives of patients and families affected by a MAPK8IP3 gene mutation by performing the following activities: raising community awareness of MAPK8IP3-Related Neurodevelopmental Disorder; facilitating research of MAPK8IP3-Related Neurodevelopmental and related Disorders; collecting and disseminating information and resources relating to MAPK8IP3-Related Neurodevelopmental and related Disorders; supporting those affected by MAPK8IP3-Related Neurodevelopmental and related Disorders; and any other charitable educational or scientific activities that are in furtherance of the Corporation's purposes.