GILLETTE CHILDRENS SPECIALTY HEALTH CARE

We are a global beacon of care for patients with brain, bone and movement conditions.

• Specifically Named Diseases Research

• 65.

GRACE SCIENCE FOUNDATION

We are changing how scientific research is done.

Kcnq2 Cure Alliance Inc

Our promise is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 Raising awareness, educating, and advancing research for KCNQ2 Developmental and Epileptic Encephalopathy.

Cri Du Chat Research Foundation Inc

CDCRF is a 501c3 Non-Profit supporting the development of a treatment for Cri du Chat / 5p- Syndrome.

Tyler Nicole Foundation

The Tyler Nicole Foundation will provide comfort and support to families who experienced the loss of a child or have a child with a life threatening illness.

• Neurology, Neuroscience

• 69.

Inadcure Foundation Inc

The INADcure Foundation is a 501c3 nonprofit charity whose mission is to support the development of treatments, including a cure, for Infantile Neuroaxonal Dystrophy (INAD) and other forms of PLA2G6-related neurodegeneration (PLAN).

• Diseases, Disorders, Medical Disciplines N.E.C.

• 70.

The TBCK Foundation

We are a non-profit dedicated to advancing research, advocacy, and education for TBCK Syndrome.

• Alliance/Advocacy Organizations

• 71.

Charlotte and Gwenyth Gray Foundation

Sisters, Charlotte & Gwenyth, were diagnosed w/ Batten Disease, a rare & fatal brain disease.

• Fund Raising and/or Fund Distribution

• 72.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.