• Alliance/Advocacy Organizations

• 1.

Team Telomere

An international community for telomere biology disorders.

• Birth Defects, Genetic Diseases

• 2.

Cystic Fibrosis Foundation

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

• Birth Defects, Genetic Diseases

• 3.

Project Dna A Nonprofit Corporation

Project DNA is dedicated to creating programs to screen, identify and enable physicians to take care of their patients with hereditary cancer syndromes Home Genes TyrerCuzick Model Patients Physicians Diagnostic Criteria More Project DNA We cant change your family history but we can change your familys future.

• Specifically Named Diseases Research

• 4.

PROJECT ALIVE

A Hunter syndrome research and advocacy foundation.

• Birth Defects, Genetic Diseases

• 5.

International Rett Syndrome Association, Inc.

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

• Birth Defects, Genetic Diseases Research

• 6.

International FOXP1 Foundation

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.

• Fund Raising and/or Fund Distribution

• 7.

Tbc1D24 Foundation

Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.

• Specifically Named Diseases

• 8.

CTNNB1 Connect and Cure Inc

Connecting families, raising awareness, finding treatments and a cure for CTNNB1 Syndrome 🧬💛💙 https://t.

International Rett Syndrome Foundation

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.