WOBBLY FEET FOUNDATION INC

WFF promotes awareness of A-T and contributes to advancement in life improving therapies & a cure.

• Libraries, Library Science

• 155.

Healing Hands Resource Center

Our primary exempt purpose is to provide mental health services to low income and uninsured patients, educational support and advocacy to students and their families, and to provide community and patient mental health education services.

Lennox-Gastaut Syndrome (LGS) Foundation

The LGS Foundation is dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.

• Specifically Named Diseases

• 157.

Prion Alliance Inc

Non-profit organization devoted to funding scientific research towards a treatment or cure for human prion diseases.

Aplastic Anemia and MDS International Foundation

Aplastic Anemia and MDS Int'l Found supports patients & families with #aplastic anemia, #MDS, #PNH, and related bone marrow failure diseases #AML #PRCA #CMML Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH The Aplastic Anemia & MDS International Foundation empowers individuals diagnosed with aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and their support network by providing timely information, a community of support, improved treatment through health provider education, and hope for a cure through promotion of research.

• Birth Defects, Genetic Diseases Research

• 159.

Sanfilippo Hope Initiative

Jarod and Caleb are brothers who suffer from an ultra-rare disease called Sanfilippo Syndrome.

• Alliance/Advocacy Organizations

• 160.

Young Genetic Stroke Alliance

Raising awareness and educating the community on all things related to this rare disease.

The Vacterl Network, INC

The VACTERL Network was established to provide support to families who have a child born with VACTERL/VATER or adults with VACTERL.

• Specifically Named Diseases Research

• 162.

INTERNATIONAL SOCIETY FOR MANNOSIDO

ISMRD is the leading advocate for families affected by a Glycoprotein Storage Disease.