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Similar organisations to THE XLH NETWORK INC

Community Rebuilding
  • Cancer

  • 145.

FRIENDS OF ESSENTIAL THROMBOCYTHEMIA INC

To raise funds for the rare blood cancer/bone marrow disorder known as Essential Thrombocythemia (ET.

Social Rank

1400

Location

West Palm Beach

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Community Rebuilding
  • Alzheimer's

  • 146.

Multiple Hereditary Exostoses Learning System Inc

The MHE Learning System (MHELS) is committed to improving lives of people with MHE through collaboration and shared learning.

Social Rank

125

Location

Haydenville

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Community Rebuilding

Rare Trait Hope Fund

Rare trait Hope Fund facilitates research and provides funding for the development of treatments for a rare disease called Aspartylglucosaminuria (AGU) in hopes to save lives of AGU kids and adults.

Location

Belle Chasse

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Community Rebuilding
  • Neurology, Neuroscience

  • 148.

PCDH19 Alliance

Our mission is to improve the lives of children and families who are affected by PCDH19 Epilepsy.

Social Rank

3100

Location

Novato

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Community Rebuilding

DOWN SYNDROME NETWORK OF GREATER GREENSBORO

The Down Syndrome Network of Greater Greensboro is committed to enriching the lives of individuals with Down syndrome by connecting with new families, providing social and educational opportunities for our members, and promoting awareness and inclusion of individuals with Down syndrome in our community.

Location

Greensboro

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Community Rebuilding

Connective Tissue Coalition, Inc

Empowering Progress; Inspiring Hope Our Mission: The Connective Tissue Coalition (CTC) drives research, raises awareness, and provides resources for individuals affected by Ehlers-Danlos, Marfan, and Loeys-Dietz Syndromes.

Social Rank

891

Location

Winthrop

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Community Rebuilding
  • Patient Services�Entertainment, Recreation

  • 151.

Idefine Inc

IDefine is committed to identifying life-changing treatments & cures and building community for those with Kleefstra Syndrome and intellectual disabilities.

Social Rank

1495

Location

Atlanta

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Community Rebuilding
  • Ambulatory Health Center, Community Clinic

  • 152.

COMMUNITY SUPPORTED ANTHROPOSOPHIC

Steiner Health is a 501(c)3 nonprofit in Ann Arbor, Michigan.

Social Rank

3025

Location

ANN ARBOR

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Community Rebuilding
  • Specifically Named Diseases

  • 153.

THRIVE WITH PYRUVATE KINASE DEFICIENCY ORGANIZATION

Thrive with Pyruvate Kinase Deficiency Organization connects treatment support, increased social awareness and advocacy to communities affected by PK deficiency.

Social Rank

242

Location

Bloomington

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